17th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 18-20, 2018 • Denver, CO
| Strategic Inclusion of Psychological Variables in a Pediatric Cochlear Implant Database
Strategic Inclusion of Psychological Variables in a Pediatric Cochlear Implant Database
The Deaf and Hard of Hearing Program (DHHP) within the Department of Otolaryngology and Communication Enhancement at Boston Children’s Hospital (BCH) strives to meet the speech-language, developmental, and neuropsychological assessment needs of a widely heterogeneous group of deaf and hard of hearing (DHH) infants and children. The majority of the patients seen by DHHP are also diagnosed with additional medical complexities and many arrive from foreign countries. Consequently, patients’ access to early intervention services, exposure to visual communication modalities, and use of assistive technologies may also vary widely. Such noted heterogeneity can present real challenges to researchers who may want to summarize, describe, make clinical inferences, or draw meaningful conclusions about the population of DHH patients served. In response to this challenge, substantially increased efforts have been made within the Department of Otolaryngology and Communication Enhancement to collect clinical information about one specific sub-sample of the DHH population: cochlear implant (CI) users. The recent creation of a departmental pediatric cochlear implant database through Research Electronic Data Capture (REDCap) has encouraged various BCH programs, including DHHP, to strategically consider what to collect from the families who have consented to share information on their child’s functioning. This poster presentation will overview: 1.) How the research needs of DHHP were identified during strategic creation of a psychology form in REDCap, 2.) How relevant domains for data collection were established, 3.) How various assessment tools, such as measures of cognitive ability, were selected as psychological variables and incorporated into REDCap design for data collection purposes and 4.) How future research efforts will be supported by the current work. Given the vast heterogeneity observed in populations of DHH infants and children, particularly those seen by DHHP, the establishment of a thoughtful and comprehensive psychology form was essential for future pediatric CI research.
- Participants will learn about the creation of a psychology form in a pediatric cochlear implant database
- Participants will consider how various psychological assessment tools can be used for data collection purposes in a pediatric cochlear implant database
- Participants will learn about the potential for future research through the establishment of a psychology form in a pediatric cochlear implant database
Presentation:
15805_8244SarahSchoffstall.pdf
Handouts:
Handout is not Available
Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference
Presenters/Authors
Sarah Schoffstall
(), Boston Children's Hospital, sarah.schoffstall@childrens.harvard.edu;
Dr. Schoffstall is the current post-doctoral fellow in psychology with the Deaf and Hard of Hearing Program at Boston Children’s Hospital, Waltham location. Prior to this, she completed her pre-doctoral internship at Connecticut Children’s Medical Center. She spent 5 years at the University of Texas in Austin as a School Psychology doctoral student and also served as the lead graduate research assistant on the Research and Evidence Synthesis Team (RES) with the Postsecondary Education Planning Network 2.0 (PN2), now the National Deaf Center.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Amy Szarkowski
(), Children's Center for Communication/Beverly School for the Deaf, amyszarkowski@cccbsd.org;
Amy Szarkowski, PhD, is the Director of The Institute at the Children's Center for Communication/ Beverly School for the Deaf (CCCBSD), and faculty for LEND (Leadership Education in Neurodevelopmental and related Disabilities), at Boston Children's Hospital. She is a Research Fellow at the Institute for Community Inclusion at the University of Massachusetts Boston.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Avi Atri
(), Boston Children's Hospital Cochlear Implant Program, Ava.atri@childrens.harvard.edu;
Ava Atri currently works as a clinical research assistant with the Cochlear Implant Program in the Department of Otolaryngology and Communication Enhancement at Boston Children's Hospital.
ASHA DISCLOSURE:
Financial -
Nonfinancial -