17th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 18-20, 2018 • Denver, CO
3/20/2018 | 9:40 AM - 10:05 AM | Family Involvement and Leadership: Pathways to Success for Families with Children who are Deaf and Hard of Hearing | Mineral D/E
Family Involvement and Leadership: Pathways to Success for Families with Children who are Deaf and Hard of Hearing
Family engagement is a not a one-time activity or a box to be checked, but rather a continuous process to ensure engagement and integration at all levels of a program. MA EHDI strives to reach the highest levels of engagement. Asking the opinion of a singular family is not enough. Families need to be included in all program planning and implementation. Families with older as well as younger children need to be continuously engaged. The MA EHDI program has increased efforts to provide additional paid opportunities for parents. Working within a state system can present challenges in funding mechanisms to ensure that families are compensated for their time and participation. Through paid positions, membership in formal and informal committees, as presenters, as focus group members and as participants in programming, families are at the core of what the MA EHDI program does. This presentation will outline the evolution of family engagement in the MA EHDI program and the unmet needs and challenges still to be faced.
- Participants will be able to define family engagement
- Participants will be able to identify methods to increase family engagement in their state
- Participants will be able to identify and engage family leaders
Presentation:
15805_8050JenniferFleming.pdf
Handouts:
Handout is not Available
Transcripts:
15805_8050SarahStone.docx
Presenters/Authors
Sarah Stone
(), MA Dept. of Public Health, sarah.stone@state.ma.us;
Sarah Stone is the Director of the Massachusetts Universal Newborn Hearing Screening Program. She has a hearing loss and has been with the program for over 20 years. She has developed programming for families, including social and educational events. She is a member of the state's Universal Newborn Hearing Screening Advisory Committee.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Jennifer Fleming
(), MA DPH, jennifer.fleming@state.ma.us;
Jennifer Fleming is the special projects coordinator for the Universal Newborn Hearing Screening Program. In her former career, she was an engineer working in the medical device industry. She now has two children including a 13-year-old son who is deaf. Her new passion is to serve and support deaf and hard of hearing children and their families. She is a member of the state's Universal Newborn Hearing Screening Advisory Committee. She recently completed her fellowship with the Shriver Center’s Leadership Education in Neurodevelopmental and Disabilities Program (LEND) at the University of Massachusetts Medical School.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.