17th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 18-20, 2018 • Denver, CO
| Cytomegalovirus: Perspectives on Identification Treatment, and Policy
Cytomegalovirus: Perspectives on Identification Treatment, and Policy
Cytomegalovirus: Perspectives on Identification Treatment, and Policy
Cytomegalovirus (CMV) affects thousands of babies each year it is the most common cause for non-genetic deafness, physical disabilities, intellectual disabilities, and death among newborns (Leung, et al, 2003). CMV is the largest and most complex member of the Herpesviridae family of DNA viruses (Leung, et al, 2003). In healthy adults and children, CMV infection may cause a mild infection, but normally asymptomatic. However, CMV becomes a problem when mothers acquire CMV while pregnant and spread the virus to the fetus (Philip, et al., 2013). Many people are not aware of CMV and the other effects it can have to a newborn baby (Leung, et al., 2003). The purpose of the research is: 1.) To evaluate the awareness of CMV; 2.) To understand the policy development and implementation implications; and 3.) To understand CMV awareness, treatment, and policy.
The research study explored the current Cytomegalovirus (CMV) legislation in the state of Utah. Utah was the first state to develop policies for early screening and detection.
The research will investigate the impact of legislation on CMV awareness. The following research questions guided the study: 1.) What is the awareness level of CMV among mothers and physicians? 2.) What is the impact of CMV legislation? 3.) How can legislation increase CMV awareness, treatment, and prevent future cases of CMV? To answer the research questions a qualitative research design was used to conduct interviews with mothers whose babies were diagnosed with CMV, politicians, and physicians.
?
References
Leung, A. K. C., Sauve, R. S., & Davies, H. D. (2003). Congenital cytomegalovirus infection. Journal of the National Medical Association, 95(3), 213-8.
Philip, R. K., Stephanie, R. B., Suresh, B. B., Paul, D. G., Catherine, A. L., Ljungman, P., Stanley, A. P. (2013). Priorities for CMV vaccine development. Vaccine
- What is the awareness level of CMV among mothers and physicians?
- What is the impact of CMV legislation?
- How can legislation increase CMV awareness, treatment, and prevent future cases of CMV?
Presentation:
15805_8038KaylaDufrene.pdf
Handouts:
Handout is not Available
Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference
Presenters/Authors
Kayla Dufrene
(), Gallaudet University: Master of Public Administration Program, kayla.dufrene@gallaudet.edu;
My name is Kayla Dufrene I am currently a second year Master of Public Administration student at Gallaudet University. I graduated from Gallaudet University in May of 2016 with her bachelors in Government and Communication studies she then started the MPA program in fall of 2016. I am originally from the small town of Des Allemands, Louisiana it is known for all of its great seafood and is often called the catfish capitol of the world! I was born with the Cytomegalovirus (CMV) and wanting to learn more about myself it started my interest in CMV research. In the fall of 2014 I attended the Cytomegalovirus (CMV) conference in Salt Lake City, Utah; one of the things they discussed was how Utah was the first state to pass CMV legislation. Seeing that this started because a mom of a child with CMV started the process and is encouraging other moms to get involved in starting legislation in their state, inspired me to want to do something similar and started my interest in policy making. I have interned with Louisiana Senator David Vitter where I was able to see the inner workings of congress. I have also interned with Special Olympics Maryland where I got to help teach athletes how to promote themselves using social media and accompanied them on their Hill day. I am looking forward to graduating this May and I hope to find a job where I can help people with disabilities through public affairs or public policy.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.