17th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 18-20, 2018 • Denver, CO
3/19/2018 | 3:35 PM - 4:05 PM | We Listened! Collaborative Development of a Newborn Screening Prenatal Fact Sheet | Granite A-C
We Listened! Collaborative Development of a Newborn Screening Prenatal Fact Sheet
The 2013 supplement to the 2007 Joint Committee on Infant Hearing (JCIH) Position Statement highlights the importance of families working in partnership with professionals to address the needs of their newborns and infants. Consequently, a parent member of the NC-EHDI State Quality Improvement (QI) Team recommended that NC-EHDI develop a prenatal education tool for families containing key information about newborn hearing screening so that prior to the birth admission, families would be knowledgeable about the in-patient hearing screening process and the importance of prompt, additional testing if the infant does not pass the initial hearing screening. The QI State team, comprised of key stakeholders and two parent representatives researched materials developed by other state EHDI programs and elected to create a prenatal fact sheet that encompassed all newborn screenings being performed in N.C. including metabolic, critical congenital heart defect, and hearing screenings. The NC Newborn Screening Fact Sheet was developed in collaboration with parents, a pregnant woman, and professional partners from the NC DPH Newborn Screening Program, the NC State Laboratory and the NC DPH Women’s Health Branch. This prenatal fact sheet educates families about the reasons for the different screenings, how the screenings are performed, when they can expect to receive the results, and, it provides links to additional resources. The content, language, images and layout were selected to make the document easy to understand, visually attractive, culturally sensitive and accessible for individuals at an 8th grade reading level. Realistic images showing babies having the screenings performed were used so that families would know what the screening processes look like. This presentation will discuss the importance of the collaboration of parent partners with health professionals and key stakeholders in the development of a newborn screening educational fact sheet for pregnant women and their families.
- Participants will be able to discuss the importance of engaging parents and key stakeholders in the development of EHDI educational materials
- Participants will be able to list the important components of an EHDI prenatal educational material.
- Participants will be able to describe features of accessible print materials
Presentation:
15805_8005LindaBowen.pdf
Handouts:
Handout is not Available
Transcripts:
15805_8005JudeWilliams.doc
Presenters/Authors
Jude Williams
(), NC Division of Child and Family Well-Being, Early Hearing Detection and Intervention Program, jude.williams@dhhs.nc.gov;
Jude has worked with the NC-EHDI Program for 13.5 years. Jude has her BS in Biology and MPH in Health Behavior/Health Education.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Holly Shoun
(), NC Division of Public Health, Early Hearing Detection and Intervention Program, holly.shoun@dhhs.nc.gov;
EHDI Parent Consultant, North Carolina Division of Public Health, Raleigh, NC. Work with the EHDI Team to improve family support and engagement throughout the state.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Linda Bowen
(), NC Division of Public Health, EHDI Program, lbowen@arhs-nc.org;
Linda Bowen is a Speech Language Pathologist with the NC EHDI program, with 29 years of experience in early intervention. She began her work with NC EHDI in 2000, with the inception of Newborn Hearing Screening in North Carolina. Linda lives in eastern NC, where resources for diagnosis are limited secondary to low population density and few providers. She enjoys working to facilitate services for underserved areas of the state to ensure the best outcomes for all children and families
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Lara Percenti
(), NC, Division of Public Health, Children and Youth Branch, lara.percenti@dhhs.nc.gov;
Lara received her MS degree in Genetic Counseling from the University of South Carolina. She worked for the Division of Public Health as a Regional Genetic Counselor prior to her current position as the Newborn Screening Follow-Up Coordiator.
ASHA DISCLOSURE:
Financial -
Nonfinancial -
Kristin Dodge
(), NC Division of Public Health, Children and Youth Branch, Kristin.Dodge@dhhs.nc.gov;
Kristin earned a Bachelor of Science degree in Human Resource Management with a Minor in Computer Science from Quinnipiac University in Hamden, Connecticut. She obtained a Master of Public Health degree from the University of Northern Colorado in Greeley, Colorado. For the past three years, she has worked as a Public Health Educator in the Genetics and Newborn Screening Unit of North Carolina’s Division of Public Health. She has over 15 years of experience working in the public and private health sectors. Kristin was employed by the Weld County Department of Public Health and Environment as a Health Education Specialist for seven years and was a Wellness Coordinator for a large private company for five years. She has experience developing and implementing health and wellness programs for families, children, youth, and preconception/prenatal women, and managing several federal, state, and local grants (i.e. CDC, MCH, Title V, March of Dimes, etc.). In her current role with the N.C. Department of Health and Human Services (DHHS), she is involved with the planning, development, and distribution of Newborn Screening educational materials for families and Health Care Professionals (HCPs).
ASHA DISCLOSURE:
Financial -
Nonfinancial -
Belinda Petttiford
(), NC Division of Public Health, Women's Health Branch, Belinda.Pettiford@dhhs.nc.gov;
Belinda is the Branch Head for the NC Division of Public Health, Women's Health Branch.
ASHA DISCLOSURE:
Financial -
Nonfinancial -
Marcia Fort
(), NC DHHS, marcia.fort@dhhs.nc.gov;
Dr. Fort is the Genetics and Newborn Screening Unit Manager in the Whole Child Health Section of the North Carolina Division of Child and Family Well-Being and serves as the NC EHDI Coordinator. Marcia has worked with the NC EHDI program since 2002. Dr. Fort has 32 years of experience as a pediatric audiologist in hospital, private practice, ENT office and public school settings.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Ann Grush
(), NC Division of Public Health, State Laboratory, ann.grush@dhhs.nc.gov;
Ann is the Newborn Screening Laboratory Improvement Consultant at the North Carolina State Laboratory of Public Health.
ASHA DISCLOSURE:
Financial -
Nonfinancial -
Jodi Keegan
(), NC Division of Public Health, EHDI Program, jodihill79@hotmail.com;
Jodi is a parent of a child with hearing loss. Jodi has participated on the NC- EHDI Advisory Committee and the NC-EHDI State Quality Improvement Team.
ASHA DISCLOSURE:
Financial -
Nonfinancial -
Morgan Moore
(), NC DHHS, Morgan.Moore@dhhs.nc.gov;
Morgan Moore, M.S., is a Speech-Language Consultant for the North Carolina EHDI Program. She has worked with the NC EHDI program for 7 years. Prior to joining the EHDI program, she had 7 years experience as a speech-language pathologist in the North Carolina Public Schools.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.