2024 Early Hearing Detection & Intervention Conference
March 17-19, 2024 • Denver, CO
| Parents of DHH children with developmental disabilities and their experiences in the EHDI program
Parents of DHH children with developmental disabilities and their experiences in the EHDI program
The Joint Committee on Infant Hearing (JCIH) 2007 position statement provides a framework for screening, diagnosis and intervention often referred to as the 1-3-6 rule. Research shows the best outcomes are observed when these milestones are met (Yoshinaga-Itano et al., 2017). In the event a milestone is missed, language delays for children with reduced hearing are more common, driving home the importance of prompt diagnosis and intervention.
Multiple barriers have been identified that may prevent families from completing a smooth journey within the EHDI program including financial, familial, or organizational hurdles. Families of children with developmental disabilities (DD) may experience additional unique barriers. For example, medical concerns or DD can delay the diagnosis of reduced hearing. For example, only 57% of sensorineural hearing losses attributed to congenital cytomegalovirus (CMV) were detected through newborn hearing screening (Fowler et al., 2017). Additionally, children with DD or cognitive delays experience unique challenges in obtaining reliable hearing thresholds during behavioral audiometry testing, postponing diagnosis and proper intervention (Trudeau et al., 2021). Late identification combined with late enrollment in early intervention results in discrepancies between their cognitive and language development; these areas of development align when reduced hearing is identified early and the family is enrolled in early intervention (Yoshinaga-Itano, 2003).
The majority of available studies reflect the positive experiences of families of DHH children within the EHDI program (Muñoz et al., 2013; MacNeil et al., 2007). DHH children with DD are often excluded from outcome studies and less is known about their experiences. Using a survey of families of children with DD, the current study will describe their experiences within the EHDI system. Comparisons will be made between families of children with and without DD. The results of the analysis will identify potential areas of improvement to better support families of children with DD.
- The participant will identify factors impacting audiological screening and diagnosis for children with developmental disabilities.
- The participant will understand experiences of families of children with developmental disabilities within the EHDI system.
- The participant will be able to identify at least one way to improve diagnosis or intervention for children with developmental disabilities within the EHDI system.
Presentation:
3478265_16524KylieJohnson.pdf
Handouts:
Handout is not Available
Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference
Presenters/Authors
Kylie Johnson
(Primary Presenter,Author,Co-Author), Utah State University, kylie.johnson@cuanschutz.edu;
Kylie is a 4th year audiology graduate student at Utah State University completed her externship at Children's Hospital Colorado. She previously graduated with her bachelor's degree in Communicative Disorders and Deaf Education in 2020.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
Financial relationship with Children's Hospital Colorado.
Nature: Audiology Assistant.
Nonfinancial -
No relevant nonfinancial relationship exists.
Deborah Mood
(Co-Author), DEBORAH.MOOD@cuanschutz.edu ;
Ph.D., University of Colorado- Anschutz
ASHA DISCLOSURE:
Financial -
Nonfinancial -
AAA DISCLOSURE:
Financial -
Nonfinancial -