2024 Early Hearing Detection & Intervention Conference
March 17-19, 2024 • Denver, CO
| Support and Engagement for families with children with CHARGE Syndrome
Support and Engagement for families with children with CHARGE Syndrome
Share successful strategies on how to engage newly diagnosed families with the CHARGE Syndrome Foundation; local agencies and resources. Present how social media can serve as the primary source of referral for families from all States. New parents can find strength, learn strategies, and support from other parents who have gone through the same journey with our Parent-to-Parent virtual support groups. Our Family Liaison Project is a model of collaboration to improve the Foundation’s outreach to both families and professionals at the national level. Under the Direction of our Outreach and Engagement Manager, our Family Liaisons build relationships, network, collaborate, and disseminate information. Family Liaisons share the latest CHARGE resources with the State Deaf-Blind Projects and the families and assist in child-find initiatives in their state. All these supports help eliminate barriers and help families access appropriate care.
- Participants will identify two new strategies to help facilitate child-find initiatives.
- Participants will be able to identify the Family Liaison assigned to their local area
- Participants will be able to explain two unique supports available from the CHARGE Syndrome Foundation that can be replicated in any area.
Presentation:
3478265_16304LourdesQuintana.pdf
Handouts:
Handout is not Available
Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference
Presenters/Authors
Lourdes Quintana
(Primary Presenter), CHARGE Syndrome Foundation, lourdes@chargesyndrome.org;
Born and raised in Bayamon Puerto Rico, Lourdes has dedicated her life to serving and advocating for families with children with different abilities. Inspired by all the challenges she faced growing up as a sibling to a wonderful person with Cerebral Palsy, Lourdes has always felt a passion to be the voice for this population. She completed her Bachelor’s in Clinic Psychology from the University of Sacred Heart and at the same time, she began her work at the Center for Personal Development directing wellness and prevention programs for young children. She then proceeded to complete her Masters Degree in Clinical Psychology from Albizu University.
After years of private practice, she moved to Orlando, Florida in 1999 to work as a Mental Health Therapist. She worked with young children and families as a Certified Infant Toddler Developmental Specialist, which led to the opportunity to work at the Developmental Center for Infants and Children, which runs the Early Intervention Program for Central Florida. This program provides Early Intervention Services for children with developmental delays from birth to 36 months. She had the privilege of working with new parents concerned about development and needing extra help to their children maximize their potential. Her goal has been to empower parents to help incorporate strategies into their daily routines that would help support language, cognitive, motor, adaptive, and social-emotional development. Lourdes has collaborated side by side with multiple agencies and organizations such as Silent Hope, Hearing Me, Down Syndrome Foundation, Center for Autism Related Disabilities, and United Cerebral Palsy, just to name a few. After 16 years leading this program, she has received many accolades and has been active in local and state Boards as an Advocate for better funding for much-needed services. She received the Don Quijote Award for Professional of the Year in 2012 and has been a member of the Florida Interagency Coordinating Council for Infants and Toddlers (Governor Appointed position) and a Board Member of the Seminole County Early Learning Coalition.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.