2024 Early Hearing Detection & Intervention Conference
March 17-19, 2024 • Denver, CO
3/19/2024 | 1:45 PM - 2:10 PM | Better Together: Lessons Learned from a Community-Engaged Research Study | Capitol 7
Better Together: Lessons Learned from a Community-Engaged Research Study
The Communities Harnessing and eMpowering Parenting Strengths (CHAMPS) team is focused on supporting families with young deaf or hard of hearing (DHH) children. Our current project (CHAMPS-DHH) uses a randomized controlled trial design to evaluate an evidence-based parenting intervention adapted for families with young DHH children followed in hearing healthcare. Behavioral parent training programs are supported by decades of effectiveness research, but they can be difficult to access and have rarely, if ever, been studied with families with DHH children. Lack of representative research and lack of access to established, effective interventions represent research-to-practice gaps that are common across most health services, including hearing healthcare for young DHH children. This trial was guided by implementation science which aims to improve fit, adoption, implementation, and sustainment of evidence-based interventions with specific populations in real-world settings. Implementation science principles include systematic planning for intervention adaptations and implementation in collaboration with partners and stakeholders —thus, community-engaged research methods are essential. This session will describe the use of community-engaged methods to adapt an existing evidence-based intervention and test its effectiveness and acceptability with families of young DHH children followed in hearing healthcare.
The panel will present and discuss our experiences and “lessons learned” while developing and conducting this study, including: developing and maintaining community-academic partnerships; transparency and humility among all partners; flexibly adapting study procedures to fit changing contexts; community members as intervention deliverers; navigating research/practice challenges; and planning for sustainment beyond the period of research funding. Panel members will include representatives of partnering agencies and organizations (i.e., EHDI and Hands & Voices), the Community Advisory Board, and members of the research team. Time will be reserved for Q&A and discussion with attendees.
- Describe the gap in previous research that this study addresses.
- Describe how community and academic partners collaborated to develop this study.
- List basic aims and principles of the field of implementation science.
Presentation:
3478265_16340Julie Jacobs.pdf
Handouts:
Handout is not Available
Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference
Presenters/Authors
Julie Jacobs
(Co-Presenter,Author,Co-Author), University of Kentucky , julie.jacobs@uky.edu;
Julie Jacobs, MPH, is a research director at the University of Kentucky, where she has worked for the past 9 years with Dr. Christina Studts on grant-funded projects that focus on increasing access to evidence-based interventions to address the needs of underserved populations, particularly for children who are deaf or hard of hearing and their families. Ms. Jacobs earned her Master of Public Health degree at Saint Louis University in 2010, and she started her public health research career over 12 years ago at Washington University in St. Louis.
ASHA DISCLOSURE:
Financial -
• Receives Salary for Employment from University of Kentucky.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
Financial relationship with University of Kentucky.
Nature: Salary is supported by grant funds.
Nonfinancial -
No relevant nonfinancial relationship exists.
Sarah Roof
(Co-Presenter,Co-Author), Kentucky Hands & Voices, sarah@kyhandsandvoices.org;
Sarah Roof is the executive director for Kentucky Hands & Voices. She is passionate about connecting with families of children who are deaf or hard of hearing and providing them with the resources they need to help their child reach his/her full potential. Her journey with deafness began when her son, Isaac, was identified at birth. He is now 10.
Sarah also serves on the Kentucky EHDI Advisory Board and the NCHAM Family Advisory Committee. She recently obtained a Master's certificate in the Infant, Toddler, & Family program at Gallaudet University.
ASHA DISCLOSURE:
Financial -
• Receives Other financial benefit for Independent contractor from University of Colorado.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
Financial relationship with Kentucky Hands & Voices.
Nature: Subcontractor with University of Colorado.
Nonfinancial -
No relevant nonfinancial relationship exists.
Lori Travis
(Co-Presenter,Co-Author), Kentucky Office for Children with Special Health Care Needs, lori.travis@ky.gov;
Dr. Lori Travis has served as the Audiology Services Administrator for the Office for Children with Special Health Care Needs (OCSHCN) for the Cabinet for Health and Families Services in Kentucky since 2020. She develops, administers, and coordinates Audiology and Early Hearing Detection and Intervention (EHDI) Programs and services throughout the state of Kentucky. Her clinical practice and research focus on pediatric hearing healthcare and EHDI. She has experience in grants management including collaborative agreements with the Centers for Disease Control (CDC) and MCHB-HRSA. She currently serves as a co-investigator on grants awarded to the University of Kentucky, University of Arkansas for Medical Services, and University of Colorado-Denver by the National Institutes of Health. Dr. Travis also served as interim EHDI Health Program Administrator, overseeing all aspects of the program. Additionally, she is a practicing audiologist at the OCSHCN clinic in Elizabethtown, KY. Prior to becoming the program administrator, she served as a staff level audiologist and Speech and Hearing Regional Coordinator since joining the OCSHCN team in 2014. Her past positions include work at a private otorhinolaryngology practice, private hearing aid practice and large university audiology clinic. Her clinical experiences include diagnosis and treatment of hearing disorders across the lifespan as well as vestibular disorder diagnosis and treatment in adults.
ASHA DISCLOSURE:
Financial -
• Receives Other financial benefit for Other activities from CHAMPS grant.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
Financial relationship with Kentucky Office for Children with Special Health Care Needs (OCSHCN).
Nature: OCSHCN receives salary and fringe support for my efforts on the grant.
Nonfinancial -
No relevant nonfinancial relationship exists.
Lisa Kovacs
(Co-Presenter,Co-Author), Hands & Voices , lisakovacs@handsandvoices.org ;
Lisa Kovacs is the Director of Programs for Hands & Voices Headquarters and the Director of the Family Leadership in Language and Learning (FL3) Center. She and her husband Brian have four young adult children including her son who is hard of hearing/deaf. Lisa was the 2019 Antonio Brancia Maxon Award for EHDI Excellence recipient. Her professional interest include; Parent Advocacy; Implementation of parent participation and engagement in systems building; Parent to Parent support; Deaf Education Reform; IDEA, ESSA, Part C and Part B Training to Parents, and Parent Leadership Training and Development.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
Jacob Holzman
(Co-Presenter,Co-Author), University of Colorado Anschutz Medical Campus, JACOB.HOLZMAN@CUANSCHUTZ.EDU;
Dr. Holzman is an Assistant Professor in the Department of Psychiatry through the University of Colorado School of Medicine and a licensed psychologist at Children’s Hospital Colorado. His research interests focus on understanding how children and parents affect each other as well as ways to improve early childhood interventions. Dr. Holzman investigates factors related to self-regulation (e.g., emotion regulation, executive functioning) that contribute to stressful experiences for parents, affect parenting behaviors, and potentially predict responses to treatments for early childhood mental health concerns. His current projects evaluate factors affecting responses to brief, scalable, and accessible parenting interventions. Ultimately, this line of work is intended to enhance clinical interventions that improve the mental health and well-being of young children and their caregivers in effective, pragmatic, and equitable ways.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
Christina Studts
(Co-Presenter,Co-Author), University of Colorado Anschutz Medical Campus , CHRISTINA.STUDTS@CUANSCHUTZ.EDU;
Dr. Studts is an associate professor of pediatrics and implementation scientist in the Adult & Child Consortium for Health Outcomes Research & Delivery Science (ACCORDS) at the University of Colorado School of Medicine. Her research focuses on increasing access to evidence-based parenting interventions among understudied and underserved populations, including parents of young children who are deaf or hard of hearing and who use hearing aids or cochlear implants. In addition to leading her own program of community-engaged research, Dr. Studts serves as an implementation scientist on teams studying the adoption and sustained use of evidence-based practices in a variety of topical areas, and she directs and teaches in the Dissemination and Implementation Graduate Certificate Program at the University of Colorado.
ASHA DISCLOSURE:
Financial -
• Receives Honoraria excluding diversified mutual funds for Other activities from ASHA.
• Receives Grants for Other activities from NIH.
• Receives Salary for Employment from University of Colorado Anschutz Medical Campus.
Nonfinancial -
• Has a Professional (reviewer)
relationship for Other volunteer activities.
AAA DISCLOSURE:
Financial -
Financial relationship with University of Colorado Anschutz Medical Campus, ASHA, NIH, various academic journals.
Nature: Employment salary, honorarium for mentoring, grant funding, reviewing manuscripts.
Nonfinancial -
No relevant nonfinancial relationship exists.