2024 Early Hearing Detection & Intervention Conference

March 17-19, 2024 • Denver, CO

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3/19/2024  |   11:30 AM - 11:55 AM   |  Data Dashboard Development for EHDI 1-3-6 Tracking and Follow-up   |  Granite A-C

Data Dashboard Development for EHDI 1-3-6 Tracking and Follow-up

Rhode Island Early Hearing Detection and Intervention (EHDI) screening, diagnostic and Early Intervention (EI) data are all collected in KIDSNET, Rhode Island’s web-based integrated child health information system. An EHDI data dashboard has been developed in KIDSNET to track each baby through the screening, diagnostic, and EI enrollment processes. This presentation will demonstrate the dashboard used by RI EHDI to easily access aggregate and individual level information and to track all communications (phone calls, letters, etc.) with the family and EHDI partners such as audiologists and EI Providers. Use of the system to document reasons not screened, diagnosed, or in EI for reporting on the Hearing Screening Follow-up Survey (HSFS) will also be presented.

  • Participants will be able to describe Rhode Island’s EHDI data dashboard.
  • Participants will learn how a dashboard in an integrated child health information system may enhance program efficiency and improve follow-up.
  • Participants will understand how an EHDI data dashboard can facilitate follow-up and tracking of reasons services were not delivered.

Presentation:
3478265_16288EllenAmore.pdf

Handouts:
3478265_16288EllenAmore.pptx

Transcripts:
3478265_16288EllenAmore.docx


Presenters/Authors

Ellen Amore (Co-Author), RI Dept. of Health, ellen.amore@health.ri.gov;
Ellen Amore is currently Deputy Director of the Center for Health Data and Analysis and Manager of KIDSNET, Rhode Island’s integrated child health information system that contains preventive health care information for Rhode Island children. She is PI on the CDC EHDI Cooperative Agreement. Other programs at the Rhode Island Department of Health that she has managed include Newborn Hearing Screening, Newborn Bloodspot Screening, Newborn Developmental Risk Assessment and home visiting. Her education includes a BA in Human Biology, with a concentration in child development, from Stanford University, and an MS in Maternal and Child Health from the Harvard School of Public Health.


ASHA DISCLOSURE:

Financial -
No relevant financial relationship exists.

Nonfinancial -
No relevant nonfinancial relationship exists.

AAA DISCLOSURE:

Financial -
No relevant financial relationship exists.

Nonfinancial -
No relevant nonfinancial relationship exists.

Mike Berry (Co-Author), HLN Consulting, LLC, berrym@hln.com;
Mike Berry, of HLN Consulting, LLC, provides IT support to RIEHDI, including overseeing the integration of EHDI data with KIDSNET, RI's integrated child health information system.


ASHA DISCLOSURE:

Financial -

Nonfinancial -

AAA DISCLOSURE:

Financial -

Nonfinancial -

Gail McDonald (Primary Presenter,Author), RI Department of Health, gail.mcdonald.ctr@health.ri.gov;
Gail McDonald is currently the administrative audiologist for their Early Hearing Detection and Intervention Program. Previously she was the Owner On-Site Audiology LLC, Providing Educational Audiology, Diagnostic testing. She also has clinical audiology experience working with all ages infants through adults.


ASHA DISCLOSURE:

Financial -
No relevant financial relationship exists.

Nonfinancial -
No relevant nonfinancial relationship exists.

AAA DISCLOSURE:

Financial -
No relevant financial relationship exists.

Nonfinancial -
No relevant nonfinancial relationship exists.

Liza Then (Co-Presenter,Co-Author), RI DOH, liza.then@health.ri.gov;
Liza is currently the manager for the Newborn Hearing Screening program and is the EHDI coordinator for Rhode Island. Liza provides oversight for the project and coordinate with other relevant statewide efforts. She previously worked as a parent consultant, and a Community Liaison for RIDOH’s Women, Infant and Children (WIC) Program. Dr. Then is fluent in written and spoken Spanish.


ASHA DISCLOSURE:

Financial -
No relevant financial relationship exists.

Nonfinancial -
No relevant nonfinancial relationship exists.

AAA DISCLOSURE:

Financial -
Financial relationship with RIDOH.
Nature: Non.

Nonfinancial -
Non-Financial relationship with RIDOH.
Nature: Non.