2024 Early Hearing Detection & Intervention Conference
March 17-19, 2024 • Denver, CO
3/19/2024 | 10:10 AM - 10:35 AM | Collaboration between Public Health, Education Professionals, and a Family-Based Organization to Support Families identified through Universal Screening for Congenital Cytomegalovirus (CMV) | Capitol 4
Collaboration between Public Health, Education Professionals, and a Family-Based Organization to Support Families identified through Universal Screening for Congenital Cytomegalovirus (CMV)
Congenital cytomegalovirus (CMV) is the most common infectious cause of birth defects and the most common cause of non-genetic sensorineural hearing loss in children in the United States. About 1 out of 5 babies born with congenital CMV will develop long-term health problems, such developmental or motor delay, vision loss, seizures, or hearing loss. In February 2023, Minnesota became the first state in the nation to screen all newborns for congenital CMV, which will result in identification of approximately 220 children per year with the infection. Congenital CMV is an established condition with high probability to affect development. Therefore, effective follow-up and support for children identified with cCMV depends on close collaboration between many partners. In this presentation, we will tell the story of partnerships between public health, education/early intervention, and a family-based organization to provide education and outreach to early education providers and families in several ways. 1) We will discuss the development of a webinar series for education and childcare professionals that provides information about special considerations for children with cCMV, characteristics of children most likely to be referred to early intervention, as well as practical ways that school districts can support children with cCMV on individualized family service plans (IFSPs). 2) We will describe the acceptability and effectiveness of a book study as a method of learning and reflection about cCMV for early intervention practitioners and special education leadership. 3) We will outline targeted educational presentations to priority partners, including regional early hearing detection and intervention (EHDI) educational teams, regional low incidence facilitators, educational audiologists, and special education coordinators. 4) We will describe the development and early implementation of a cCMV-specific parent-to-parent support program.
- Participant will be able to describe one way to promote awareness, understanding, and compassion for children with congenital CMV and/or other conditions with a high probability of resulting in a developmental delay.
- Participant will be able to discuss a model for parent-to-parent support of a child with congenital CMV.
- Participant will be able to list 2 methods to reach professionals working in educational settings with information about congenital CMV.
Presentation:
3478265_16265GinaLiverseed.pdf
Handouts:
Handout is not Available
Transcripts:
3478265_16265GinaLiverseed.pdf
Presenters/Authors
Darcia Dierking
(Primary Presenter), Minnesota Department of Health, darcia.dierking@state.mn.us;
Darcia Dierking, Au.D. holds pediatric audiology specialty certification and has more than 20 years of clinical and research experience working with both children and adults. Dr. Dierking works with the Minnesota Department of Health Early Hearing Detection and Intervention program doing longitudinal follow-up for children who are deaf and hard of hearing.
ASHA DISCLOSURE:
Financial -
• Receives Salary for Employment from Minnesota Department of Health.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
Financial relationship with Minnesota Department of Health.
Nature: Employment.
Nonfinancial -
No relevant nonfinancial relationship exists.
Brenda Hommerding
(Co-Presenter), MN Hands & Voices/LSS, Brenda.Hommerding@lssmn.org;
Brenda Hommerding lives in Rice, Minnesota with her husband, Lynn. They are parents of adult twin girls. The girls along with Brenda cover the whole spectrum of high frequency sensorineural hearing difference from mild to profound. Brenda comes from an extensive line of family history with hearing differences including her maternal grandparents who were deaf and attended a deaf school in Minnesota. Brenda and Lynn have also been blessed with two grandsons, both who are deaf.
Brenda currently serves in the West Central Region of the Deaf and Hard of Hearing Advisory Board. Brenda is the West Central Region representative board member of the Minnesota Commission of the Deaf, DeafBlind, and Hard of Hearing and serves on the Community and Legislative Alliance Committee. Brenda is currently working with the Minnesota Commission serving Deaf, DeafBlind, and Hard of Hearing individuals to evaluate the statewide system of dissemination materials for families with children Grades 5 through 8. Brenda served as a member and then the co-chair of Minnesota’s Department of Human Services, Deaf and Hard of Hearing Advisory Board (Central Division) for 10 years.
In 2017 Brenda received the Miss Congeniality Award at National Hand & Voices. Her passion to collaborate with community stakeholders has been instrumental in connecting families with their parent guides and deaf/hard of hearing guides.
Brenda has been involved with Minnesota Hands & Voices for many years starting out as the Central Minnesota Parent Guide in 2006 then transitioned into the Lead Outstate Parent Guide and now has been the Guide By Your Side Manager since 2017.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
Financial relationship with Minnesota Hands & Voices/Lutheran Social Service of Minnesota.
Nature: Pilot project in partnership with Minnesota Department of Health.
Nonfinancial -
No relevant nonfinancial relationship exists.
Gina Liverseed
(Co-Presenter), Minnesota Department of Health, gina.liverseed@state.mn.us;
Gina Liverseed is the CMV Nurse Specialist in the Children and Youth with Special Health Needs section at the Minnesota Department of Health. In this role, she is responsible for coordinating the longitudinal follow-up of children identified with congenital CMV and providing education about CMV to public and provider audiences. She holds Bachelor and Master of Nursing degrees from the University Minnesota and a Doctor of Nursing Practice degree from the University of North Dakota. Gina has over 20 years of experience working as a maternal-child health nurse and a Women’s Health Nurse Practitioner. She has a special interest in perinatal infectious disease.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
Callie Holmes
(Co-Presenter), MN Hands & Voices/LSS, Callie.holmes@lssmn.org;
Callie Holmes lives in Medford, Minnesota with her husband, Randy, and their five children. Their daughter was born with Congenital Cytomegalovirus, leading to deafness as well as other developmental challenges.
Callie has been involved with Minnesota Hands & Voices for five years; receiving support, attending events with her family, and attending conferences. She began working as a Parent Guide for Southeastern Minnesota in 2022. For the past 6 months, Callie has expanded her work to include providing support and resources to families of infants born with Congenital Cytomegalovirus. Most recently, Callie has begun working as a Parent Guide for the Southwest Region and is now covering all of Southern Minnesota.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
Financial relationship with Minnesota Hands & Voices/ Lutheran Social Service of Minnesota.
Nature: Pilot Project in Partnership with Minnesota Department of Health.
Nonfinancial -
No relevant nonfinancial relationship exists.
Jess Moen
(Co-Presenter), Minnesota Low Incidence Projects / Brightworks, jess.moen@brightworksmn.org;
Jess is the Minnesota Statewide Early Hearing Detection and Intervention (EHDI) Specialist with the Minnesota Low Incidence Projects. Jess has a background of working with children with hearing loss and their families as a Teacher of Deaf/Hard of Hearing in Northwestern Minnesota. She has focused much of her career on supporting young children with disabilities and their families during the early childhood years.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.