20th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
February 28 - March 2, 2021 • Cincinnati, OH

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3/08/2020  |   1:30 PM - 4:30 PM   |  Developing Data Sharing Arrangements between EHDI and Part C to Improve Early Identification and Services   |  New York A

Developing Data Sharing Arrangements between EHDI and Part C to Improve Early Identification and Services

Presenters: Evelyn Shaw, Sharon Walsh, Haidee Bernstein and selected EHDI and Part C state staff. As part of program evaluation and quality improvement initiatives, the Centers for Disease Control and Prevention and the Health Resources and Services Administration ask EHDI Programs to respond to data requests related to early intervention. EHDI Programs often encounter challenges with accessing early intervention data and rely on collaboration with their State Part C Programs to fulfill these requirements and requests. State Part C Programs are required to coordinate and collaborate their child find efforts and ensure the programmatic needs of all eligible children including those who are deaf or hard of hearing are being met. Therefore, both EHDI and Part C benefit greatly from sharing data to support better outcomes for populations mutually served. State EHDI and Part C early intervention programs are engaged in various levels of data sharing related to increasing the quality of their programs particularly as it relates to young children with hearing differences/loss. The field recognizes the need to increase the quality and frequency of data sharing arrangements between EHDI and Part C in order improve early identification and services for young children who are deaf or hard of hearing. This interactive workshop is designed as a working session for state teams of Part C and EHDI Program representatives. Participants will receive information and resources from national technical assistance staff and selected states to assist them in developing and/or enhancing data sharing arrangements. State teams will have opportunities to discuss challenges and share strategies, and develop a draft data-sharing plan.

  • Participants will increase their understanding of the privacy requirements (e.g. under IDEA, FERPA and HIPAA) and important technical aspects needed to address data sharing.
  • Participants will gain knowledge of data sharing arrangements including challenges and strategies from selected states and will share and receive resources on data sharing
  • Participants will have the opportunity to network with other participants and presenters to draft a plan for developing data sharing arrangements between EHDI and Part C

Presentation:
21060_12542EvelynShaw.pdf

Handouts:
Handout is not Available

Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference


Presenters/Authors

Sharon Walsh (), DaSy Center, swalsht@email.unc.edu;
Sharon Walsh has provided consultation on the implementation of IDEA for over 30 years. Currently, she is the Governmental Relations Consultant for the Division for Early Childhood of CEC (DEC) and the IDEA Infant and Toddler Coordinators Association (ITCA). Sharon also is a consultant on the federally funded Early Childhood Technical Assistance Center (ECTA) and the Center for IDEA Early Childhood Data Systems (DaSy). In conjunction with her TA Center work, she has provided consultation with CDC EHDI Committee. Previously, she has worked in a large suburban school district, for LRP Publications, and for the National Association of State Directors of Special Education (NASDSE).


ASHA DISCLOSURE:

Financial -
No relevant financial relationship exist.

Nonfinancial -
No relevant nonfinancial relationship exist.

Evelyn Shaw (), ECTA Center, evelyn.shaw@unc.edu;
Evelyn Shaw, M.Ed., is a technical assistance specialist at the Early Childhood Technical Assistance (ECTA) Center, FPG Child Development Institute. Through a contract with CDC, she supports collaboration between EHDI and Part C state programs to improve outcomes. As a technical assistance specialist with ECTA, she is the topic specialist on ASD and early identification and works on issues related to child find and use of data to target improvements. She has worked in technical assistance for 30 years. Her research interests focus on the translation of research on evidence-based interventions and practices to implementation of these practices at multiple levels (e.g., home, community, provider, program, and state). Most recently she was a co-author of a paper that described the variability in Part C state definitions of diagnosed conditions.


ASHA DISCLOSURE:

Financial -
No relevant financial relationship exist.

Nonfinancial -
No relevant nonfinancial relationship exist.

Haidee Bernstein (), SRI Education , haidee.bernstein@sri.com;
Haidee Bernstein, Ph.D. is an Early Childhood Researcher/Technical Assistance Specialist with the IDEA Early Childhood Data Center (DaSy) at SRI Education with 25 years of experience as a researcher and technical assistance consultant. She has deep knowledge and expertise about both early childhood special education and in school-age special education issues. Dr. Bernstein has provided guidance in the areas of public policy analysis; policy evaluation; technical assistance to states and localities; design, management, and coordination of state grants for special education assistance; Head Start, Child Abuse Prevention and Treatment Act (CAPTA), Early Hearing Detection Intervention (EHDI) Program and other areas of early childhood. Dr. Bernstein has provided support and guidance to states related to their IDEA data reporting Indicators, including assisting states at the local, state, and national levels. She has presented at national conferences and has worked with the Centers for Disease Control (CDC) to increase interactions and knowledge between EHDI and IDEA program managers.


ASHA DISCLOSURE:

Financial -
No relevant financial relationship exist.

Nonfinancial -
No relevant nonfinancial relationship exist.

Susannah Boudreaux (), Louisiana OPH EHDI Program, Susannah.Boudreaux@la.gov;
Susannah Boudreaux, Program Manager MEd


ASHA DISCLOSURE:

Financial -
No relevant financial relationship exist.

Nonfinancial -
No relevant nonfinancial relationship exist.

Annie Converse (), DES/AzEIP, kconverse@azdes.gov;
To Be added


ASHA DISCLOSURE:

Financial -
No relevant financial relationship exist.

Nonfinancial -
No relevant nonfinancial relationship exist.

Karl White (), Utah State University, karl.white@usu.edu;
Dr. White is a Professor of Psychology, the Emma Eccles Jones Endowed Chair in Early Childhood Education, and the founding Director of the National Center for Hearing Assessment and Management. He has been the PI or Co-PI for over $50 million of competitively awarded research. His work has been recognized with awards from such diverse organizations as the Deafness Research Foundation, the American Association for Speech Language and Hearing, The Swedish Society of Medicine, and the Alexander Graham Bell Association for the Deaf. He has hundreds of publications and presentations at scholarly meetings, and has been an invited speaker to more than 35 countries. He also serves on many national and international advisory groups for organizations such as the United States Department of Health and Human Services, the World Health Organization, the Institute of Medicine, and the American Academy of Pediatrics.


ASHA DISCLOSURE:

Financial -
No relevant financial relationship exist.

Nonfinancial -
No relevant nonfinancial relationship exist.

Fran Altmaier (), Arizona Department Health Services, OFfice of Newborn Screening, Fran.Altmaier@azdhs.gov;
Fran is the Case Management Coordinator at the Arizona Department of Health Services, Office of Newborn Screening. She provides administrative oversight to the follow up teams for both hearing and bloodspot. Prior to becoming the Coordinator in November 2014, Fran spent the prior 2 1/2 years as the High Risk Coordinator/Project Specialist. She provided follow up to all newborns who spent >5 days in a NICU and did not pass their newborn hearing screen as well as completing CQI projects related to reducing LTFU. Fran has a Bachelor of Social Work degree. Before joining the Newborn Screening Program over 6 years ago, Fran spent 18 years as a social worker in the early intervention field.


ASHA DISCLOSURE:

Financial -
No relevant financial relationship exist.

Nonfinancial -
No relevant nonfinancial relationship exist.

Terri Ibieta (), Louisiana OPH EHDI Program, terri.ibieta@la.gov;
Terri Ibieta, M.Ed. LA EHDI Program Coordinator


ASHA DISCLOSURE:

Financial -

Nonfinancial -