19th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 8-10, 2020 • Kansas City, MO
3/10/2020 | 11:30 AM - 12:00 PM | Journey From 8% To 45% Parent Survey Response Rate: What We Did and What We Learned | Chicago A
Journey From 8% To 45% Parent Survey Response Rate: What We Did and What We Learned
As a product of an EHDI program evaluation, a recommendation was made to conduct a survey to better understand why some parents were unresponsive to hearing screening referrals and supports. Past parent surveys however had produced low response rates, and the program was doubtful that another survey using current methods would produce useful data. The team consulted with colleagues in the Maternal Child Health Epidemiology Unit (MCH-Epi) which administers the PRAMS and CUBS surveys for Alaska with a high response rate. MCH-Epi advised EHDI to partner with the University of Alaska-Anchorage, Center for Human Development (CHD) to administer a parent survey to those individuals. The EHDI program contracted with CHD to develop and administer a parent survey on behalf of the program. An Institutional Review Board (IRB) approved survey was chosen to increase confidence in validity and usefulness of the results. The parent survey was developed to better understand the barriers and positive interactions parents encounter at each stage of follow-up after the parent received a referral from newborn hearing screening. The family surveys were conducted by parents of children who are deaf or hard of hearing. The survey had a 45% response rate. Some outcomes identified:
1. When an infant is referred to an audiologist (i.e., does not pass the final hearing screening) how is that referral managed?
2. If no appointment with the audiologist or hearing loss specialist was made or kept, why not?
A Phase 2 parent survey is planned for 2019-2020 to expand the survey to include more diagnosed families to better understand their journey through diagnosis, parent navigation and Early Intervention.
- Participants will be able to describe the usefulness of parent surveys to guide program activities
- Identify strategies to develop a useful parent survey
- Asses the value of investing in a personalized parent survey
Presentation:
21060_12757AnnetteCallies.pdf
Handouts:
Handout is not Available
Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference
Presenters/Authors
Annette Callies
(), State of Alaska, annette.callies@alaska.gov;
Annette is responsible for management of the EHDI Program. As Coordinator of Quality Improvement Team, she guides policies to increase follow-up rates. She serves as the lead on follow-up activity analysis, interpretation, and reporting on programmatic data to plan or reconfigure systems to improve efficiency, including provision of technical assistance as required. Annette also provides education to health care providers, early intervention specialists and parents about the program and monitors the State database for timeliness of referrals and to identify and resolve system issues. To engage a diverse group of stakeholders in systems improvement, she plans and facilitates the EHDI Advisory Committee Meetings and provides technical assistance to sub-committees. In her free time, Annette enjoys painting, portrait photography and playing with her five grandbabies.
ASHA DISCLOSURE:
Financial -
• Receives Salary for Employment from State of Alaska.
Nonfinancial -
No relevant nonfinancial relationship exist.
LynnAnn Tew
(), Center for Human Development/University of Alaska-Anchorage, lynnann@alaskachd.org;
LynnAnn Tew, MA, has served as a researcher at the Center for Human Development/University of Alaska-Anchorage with a focused on health and disabilities since 2012. She coordinated the Alaska EHDI Parent Survey Evaluation researchers. Other research projects have included Alaska PRAMS (Pregnancy Risk Assessment Monitoring Program) and Alaska CUBS (Childhood Understanding Behaviors) Survey Telephonic Data Collection, ILP/Family Outcome Survey, Health promotion interventions for i/DD, and Alaska Health & Disabilities Program Needs Assessment. She also coordinates training for healthcare professionals and communities working with people with disabilities.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.