19th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 8-10, 2020 • Kansas City, MO
3/10/2020 | 2:15 PM - 2:45 PM | Parent Partners - From a Seat at the Table to Setting the Agenda | Atlanta
Parent Partners - From a Seat at the Table to Setting the Agenda
Through our federal HRSA grant we have been challenged to engage parents and build parent leadership over the past three years. Arizona Early Hearing Detection and Intervention (AzEHDI) has had parents at the table for more than 20 years. AzEHDI has funded parent events, parent to parent support and parent attendance at national EHDI meetings long before it was required, however, input was often limited to a seat at the table. The challenge that Arizona took on over the past three years has been to move parents from being invited to the table to being the ones bringing others to the table and becoming active leaders of EHDI policy and practice for Deaf and Hard of Hearing Children. Change involves a paradigm shift in how we look at everything from meetings to grant applications. We will discuss our progress, successes and challenges in this process both from the perspective of parent leaders and the state EHDI coordinator.
- Participants will be able to identify three challenges of partnership
- Participants will be able to relate the content to opportunities in their state EHDI programs
- Participants will be able to identify three opportunities for change
Presentation:
21060_12752NajwaGhattas.pdf
Handouts:
Handout is not Available
Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference
Presenters/Authors
Lylis Olsen
(), The EAR Foundation of Arizona, lylisolsen@msn.com;
Lylis Olsen is the State EHDI Coordinator in Arizona. She is a pediatric audiologist with 35years of experience. She also has a Master's degree in Public Health and has 28 years experience in state newborn hearing screening programs. She works with the EAR Foundation of Arizona on education, advocacy and promoting services for families and their children who are Deaf or Hard of Hearing. Lylis also manages the HEAR for Kids, a unique program that serves as a safety net for children in need of loaner cochlear implants or hearing aids, permanent hearing aids or access to all levels of diagnostic audiology services.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Heidi Klomhaus
(), Arizona Hands & Voices, executivedirector@azhv.org;
Heidi Klomhaus holds a Certificate in Deaf Studies, an AAS in Sign Language Interpretation and a BA in Interdisciplinary Studies-Public Administration. She serves as Executive Director and Guide By Your Side Coordinator of Arizona Hands & Voices. Being Hard of Hearing herself with severe hearing loss led her to attending college and pursuing studies in the Deaf world. During that time, her youngest child was born hard of hearing, giving Heidi a new direction in life. Knowing there were opportunities to make a difference in her own daughter’s journey led her to Arizona Hands & Voices where she is now making a difference in the lives of deaf or hard of hearing children and their families statewide.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Heidi Klomhaus
(), Co-Executive Director/DHH Guide Coordinator, hklomhaus@azhv.org;
Heidi Klomhaus holds a Certificate in Deaf Studies, an AAS in Sign Language Interpretation and a BA in Interdisciplinary Studies-Public Administration. She serves as Co-Executive Director and DHH Guide Coordinator of Arizona Hands & Voices. Being Hard of Hearing herself with severe hearing loss led her to attending college and pursuing studies in the Deaf world. During that time, her youngest child was born hard of hearing, giving Heidi a new direction in life. Knowing there were opportunities to make a difference in her own daughter’s journey led her to Arizona Hands & Voices where she is now making a difference in the lives of deaf or hard of hearing children and their families statewide.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Liliana Herrera
(), Arizona Hands & Voices, lherrera@azhv.org;
Liliana is the mom of three Sofia (6), Yovani (3) and Jonathan (1). Sofia and Jonathan are both hearing. Yovani is Hard of Hearing Plus, which means he has multiple challenges. He has late-onset hearing loss, and at 18 months, he was diagnosed with ZTTK Syndrome, a rare genetic disorder. Liliana became a Parent Guide for Arizona Hands & Voices to provide support to families. She is currently pursuing a degree in Speech and Language Pathology.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.