19th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 8-10, 2020 • Kansas City, MO
3/09/2020 | 11:00 AM - 11:30 AM | Raising Awareness of congenital cytomegalovirus (cCMV) in Arizona: Developing and Field-Testing Educational Materials | Chouteau A
Raising Awareness of congenital cytomegalovirus (cCMV) in Arizona: Developing and Field-Testing Educational Materials
Congenital cytomegalovirus (cCMV) infection occurs when a pregnant woman is exposed to cytomegalovirus (CMV) and the virus passes from the pregnant woman to her unborn child. In Arizona, 400-600 newborns are born with cCMV annually, resulting in approximately 84 children with permanent disabilities, including hearing loss. CMV infection in mothers is preventable through simple hygienic precautions to avoid contact with the body fluids of young children, yet only 9% of US women are CMV-aware. Research on the impact of cCMV education supports the implementation of preventative strategies during prenatal care. Our objectives were to collect data on knowledge of cCMV among women of child-bearing age, focusing on young women from diverse backgrounds and various socioeconomic status (SES) groups, and to test culturally-relevant and age-specific educational materials and prevention messages about cCMV in the Arizonan population. We conducted in-person focus groups in English and in Spanish. Prior to participation, participants completed a 10-question survey to assess demographics, general awareness of several acute and chronic health conditions, and specific knowledge of cCMV. We collected qualitative data on participant reactions to educational materials. Preliminary results indicate that participants had low CMV awareness and knowledge prior to the focus group, but were interested in educating themselves more on cCMV, and in raising awareness of cCMV within their family and community groups. Our long-term goal is to improve education of women of childbearing age in Arizona about cCMV, so that knowledge may translate into improved health outcomes for children statewide. This study was approved by the Midwestern University IRB (AZ #1277, IRB approval 7/10/2019), and funded by the National CMV Foundation (to MS and KMM), and HRSA EHDI (to LO).
- Discuss CMV prevention
- Discuss importance of culturally relevant CMV education
- Discuss developing stakeholder interest in CMV legislation
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Presenters/Authors
Kathleen Muldoon
(), Midwestern University, kmuldo@midwestern.edu;
Dr. Muldoon received her PhD in anthropology from Washington University in St. Louis, and is Associate Professor of Anatomy at Midwestern University, Glendale, AZ, where she teaches anatomy and embryology to medical and allied health students. Dr. Muldoon is an education scholar, with interest in the effectiveness of teaching innovations on retention of material and public health knowledge. Her research interests include evaluating methods for prevention of congenital cytomegalovirus (CMV) infection through professional education, and promotion of CMV awareness and behavioral interventions in the community. Dr. Muldoon's research has been funded by the National Science Foundation, the National Geographic Society, American Philosophical Society, and Sigma Xi, among others. She has given research seminars and community outreach workshops nationally and internationally, and her work has been featured on National Public Radio. Dr. Muldoon is the proud mother of three children: her eight-year-old son has multiple disabilities due to congenital cytomegalovirus.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Alejandra Arroyo
(), Northern Arizona University, ama2358@nau.edu;
Alejandra Arroyo is a second year Occupational Therapy doctorate student at Northern Arizona Universities’ Phoenix Biomedical Campus. She is a graduate from the University of Arizona with a bachelor’s degree in Special Education and Rehabilitation. In addition to attending graduate school, she is the president of her programs Student Occupational Therapy Association (SOTA) and founded her schools Coalition of Occupational Therapy Advocates for Diversity (COTAD) chapter. In the future, Alejandra hopes to work in a pediatric occupational therapy setting with a focus on Latinx clients and trauma informed care. Her role in this research project includes creating materials and leading focus groups of diverse women to gain more knowledge on their current health care education and materials available to them.
ASHA DISCLOSURE:
Financial -
Nonfinancial -
Seth Dobson
(), Artful Analytics, LLC, seth.dobson@gmail.com;
Seth Dobson received his PhD in Anthropology from Washington University in St. Louis. He is currently an analytics consultant for a marketing technology firm. He has industry expertise as a data analyst in financial services and telecommunications. Before joining the corporate world, Dr. Dobson was assistant professor of anthropology at Dartmouth College. His academic research focused on primate communication and brain evolution. Dr. Dobson and his wife Dr. Kathleen Muldoon live with their three beautiful children in sunny Phoenix, AZ. His middle child was born with congenital cytomegalovirus and is multiply-disabled as a result.
ASHA DISCLOSURE:
Financial -
Nonfinancial -
Lylis Olsen
(), The EAR Foundation of Arizona, lylisolsen@msn.com;
Lylis Olsen is the State EHDI Coordinator in Arizona. She is a pediatric audiologist with 35years of experience. She also has a Master's degree in Public Health and has 28 years experience in state newborn hearing screening programs. She works with the EAR Foundation of Arizona on education, advocacy and promoting services for families and their children who are Deaf or Hard of Hearing. Lylis also manages the HEAR for Kids, a unique program that serves as a safety net for children in need of loaner cochlear implants or hearing aids, permanent hearing aids or access to all levels of diagnostic audiology services.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Melissa Selbst
(), The EAR Foundation of Arizona, melissa@earfoundationaz.com;
Executive Director, 2006-present
EAR Foundation of Arizona
Staff and volunteer management, Fundraising, Community Relations, Board Management and Development
Financial Management, Program Management Professional Education and Training
Director of Program Services and Public Affairs, 1996 – 2006
March of Dimes Arizona Chapter, Phoenix, Arizona
Program management and oversight for public health education, professional health education,
advocacy and grants management for the Arizona Chapter.
Consultant, Creative Management Learning Solutions, L.L.C., 1996-current
Developed a Managed Care Course Curriculum and course instruction on various health topics. Participated in the development, implementation and evaluation of a HRSA grant. Conducted patient chart audits. Developed patient education materials for patient newsletters both Medicaid and Medicare populations. Develop and market health education tools and trainings.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.