19th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 8-10, 2020 • Kansas City, MO
3/10/2020 | 9:40 AM - 10:10 AM | Supporting Families Who Say No to Early Intervention Services for Their Infants and Toddlers who are DHH | Empire B
Supporting Families Who Say No to Early Intervention Services for Their Infants and Toddlers who are DHH
The Family Leadership in Language and Learning (FL3) has developed resources for families and professionals on the topic of early intervention. This presentation will focus on insights from providers who engage with families who may not or do not choose to enroll in early intervention services and to explore further understanding of these families compared to families in the past. Results from a 2019 Roundtable discussion at the Western Regional Early Intervention Conference with almost 30 representatives from eight states providing input on this unique population will be shared. As a result of this information, resources have been developed for families which are useful in sharing between parent-to-parent communication and those discussing the benefits of early intervention in state and territory EHDI systems. Information gleaned from this group included: reasons families decline early intervention; unique population considerations (i.e. unilateral, deaf plus); factors for underrepresented communities; differences in new generations of parents/children with the availability of technology for information gathering.
- The participants will glean useful knowledge from a report derived from a roundtable discussion with early intervention providers at the 2019 Western Regional Early Intervention Conference to help inform the development of resources for parent-to-parent communication and EI to family support.
- o Participants will have access to and be prepared to utilize the product developed for the population addressed in the presentation.
- o The participants will understand the strategies/activities covered under the federally funded cooperative agreement – The Family Leadership in Language and Learning (FL3) to provide support for families who may not or do not choose to enroll in early intervention services.
Presentation:
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Presenters/Authors
Janet DesGeorges
(), Hands & Voices, Headquarters, janet@handsandvoices.org;
Janet DesGeorges lives in Boulder, Colorado and is Executive Director of Hands & Voices Headquarters and the P.I. for the FL3 Center. Janet has presented to groups worldwide about the experiences of families as they journey through life with a child with deafness or hearing loss. Ms. DesGeorges received a program certificate from the MCH Public Health Leadership Institute in 2011 at the University of North Carolina – Chapel Hill.
As an EHDI Systems advocate, Janet believes in the principles and guiding philosophies of Hands & Voices towards a parent-driven, professionally-collaborative approach when supporting families in the early years. Her areas of interest include Leadership Development for parents who participate in systemic improvement; Deaf Education Reform and Improvement; Children’s Safety and Success(preventing child abuse and neglect); Early Hearing Detection and Intervention Systems; and Parent/Professional partnerships in Quality Improvement processes.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Sara Kennedy
(), Hands & Voices, Sara@handsandvoices.org;
Sara is a mom of four children, including a daughter born at home and later-identified as deaf after a progressive loss. An occupational therapist by training, Sara has served at Hands & Voices since 2001 as the editor for the quarterly newspaper, the Communicator, and a trainer for the educational advocacy program, ASTra. Sara has a particular interest in advocating for hearing screening in the homebirth community. She was a coauthor for the Virtual Waiting Room web presence at Hands & Voices, the handbook Bridge to Preschool: Navigating a Successful Transition as well as articles and presentations on topics ranging from children's safety, promoting self-advocacy, the decision process around cochlear implants, and supporting fathers and rural families. Sara transitioned out of her role as Director of Colorado Hands & Voices (2011-2022). She finds her new consulting role with young adult children rewarding and challenging.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.