19th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 8-10, 2020 • Kansas City, MO
3/09/2020 | 11:30 AM - 12:00 PM | The North Carolina Early Hearing Detection and Intervention Program (NC-EHDI) and The CARE Project (TCP) – Growing a Flourishing Partnership | Chicago B
The North Carolina Early Hearing Detection and Intervention Program (NC-EHDI) and The CARE Project (TCP) – Growing a Flourishing Partnership
According to the Family Leadership in Language and Learning (FL3) national family needs assessment survey, families with children who are deaf or hard of hearing (DHH) report that the most valuable source of support comes from families with a shared experience of having a DHH child. Fostering parent-to parent support has been a priority area for NC-EHDI for almost 10 years. NC-EHDI and the non-profit agency, The CARE Project (TCP) have partnered during this period to connect families and provide family support programs across the state. Between 2011-13, NC-EHDI in collaboration with TCP hosted ten (10) TCP workshops reaching 87 parents and 67 professionals, offered a parent -professional leadership workshop in 2016, and will be sponsoring 3 family retreats during the current grant cycle reaching families of newly identified infants and young children, elementary age children and teens and tweens. Our partnership has flourished over the years and we have expanded our collaborative efforts to include the development of sensitivity trainings for newborn hearing screeners, pediatric audiologists and early interventionists; engaging families in NC-EHDI activities as well as bringing together parents and professionals for shared experiences. In 2019, NC-EHDI sponsored a state-wide Parent-Professional Collaborative reaching 54 parents and 134 professionals. Due to the overwhelming success of the collaborative, another collaborative will be held in February 2020. Eighty-five (85) parents have completed evidence-informed parent leadership training modules in conjunction with the TCP family support events. This presentation will focus on the evolution of the NC-EHDI/TCP partnership and will include an overview of the family support programs offered, the new expanded activities and a parent’s journey to engagement and leadership within the NC-EHDI Program through this partnership.
- . Participants will be able to discuss the importance of family support for families of children who are DHH
- Participants will be able to describe the steps to creating a strong partnership with a family support organization.
- Participants will be able to describe the important connection between family support, family engagement and family leadership in the EHDI Program.
Presentation:
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CART transcripts are NOT YET available, but will be posted shortly after the conference
Presenters/Authors
Jude Williams
(), NC Division of Child and Family Well-Being, Early Hearing Detection and Intervention Program, jude.williams@dhhs.nc.gov;
Jude has worked with the NC-EHDI Program for 13.5 years. Jude has her BS in Biology and MPH in Health Behavior/Health Education.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Marcia Fort
(), NC DHHS, marcia.fort@dhhs.nc.gov;
Dr. Fort is the Genetics and Newborn Screening Unit Manager in the Whole Child Health Section of the North Carolina Division of Child and Family Well-Being and serves as the NC EHDI Coordinator. Marcia has worked with the NC EHDI program since 2002. Dr. Fort has 32 years of experience as a pediatric audiologist in hospital, private practice, ENT office and public school settings.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Johnnie Sexton
(), The CARE Project, johnnie@thecareproject.com;
Johnnie Sexton Au.D. has worked with children who are deaf and hard of hearing for 40+ years. With the passage of the Newborn Hearing Screening mandate in North Carolina, he designed the early intervention system for audiology in North Carolina. He has devoted his energy in the past 8 years to redefining counseling for families with children who have hearing challenges and the professionals who provide services for them. He owns a private practice specializing in educational audiology services and has established the nonprofit agency, The CARE Project, Inc., serving as Executive Director, for the advancement of family, professional and preprofessional training opportunities in counseling.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Holly Shoun
(), NC Division of Public Health, Early Hearing Detection and Intervention Program, holly.shoun@dhhs.nc.gov;
EHDI Parent Consultant, North Carolina Division of Public Health, Raleigh, NC. Work with the EHDI Team to improve family support and engagement throughout the state.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Jenna Rankin
(), NC Division of Public Health, EHDI Program, jenna.rankin@gmail.com;
I taught elementary and middle school in Minnesota for six years before becoming a stay at home mother when my oldest daughter was born in 2013. My husband’s parents are both profoundly deaf, so we were very diligent about making sure our firstborn child had her newborn hearing screening completed quickly and accurately. When her results came back normal, we figured that whatever had caused his parents hearing loss was not genetic after all. Our second daughter was born in 2015, and we were surprised to discover that she did not pass the hearing screening. Her ABR two weeks later confirmed that she was profoundly deaf. We are so grateful that we encountered people who knew the importance of accurate diagnostic evaluation and early intervention. That is why I became involved in EHDI as a parent member of the Advisory Board last year.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.