19th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 8-10, 2020 • Kansas City, MO
3/10/2020 | 3:00 PM - 3:30 PM | Families and researchers: Why connect? | New York B
Families and researchers: Why connect?
This presentation will go beyond the typical framework of families as the study subjects of research, to explore the ways in which family leaders and family-based organizations can meaningfully support research in many ways including: finding/having access to families, disseminating information about research projects, formalized contracts with universities to support the design of research studies. Examples of research projects conducted in conjunction with parents will be shared. This presentation will be delivered from a researcher's perspective, as well as a parent perspective. Families can be motivated to participate in research studies when they understand the benefits to both their own children and for furthering support to other families. Strategies will be shared for ensuring successful participation.
- Participants will be able to describe why connecting families and family based organizations in the development, implementation, and results of the research process is important for children who are DHH.
- Participants will be able to describe strategies for authentically engaging families in research studies.
- Participants will be able to identify benefits for families participating in research.
Presentation:
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Presenters/Authors
Janet DesGeorges
(), Hands & Voices, Headquarters, janet@handsandvoices.org;
Janet DesGeorges lives in Boulder, Colorado and is Executive Director of Hands & Voices Headquarters and the P.I. for the FL3 Center. Janet has presented to groups worldwide about the experiences of families as they journey through life with a child with deafness or hearing loss. Ms. DesGeorges received a program certificate from the MCH Public Health Leadership Institute in 2011 at the University of North Carolina – Chapel Hill.
As an EHDI Systems advocate, Janet believes in the principles and guiding philosophies of Hands & Voices towards a parent-driven, professionally-collaborative approach when supporting families in the early years. Her areas of interest include Leadership Development for parents who participate in systemic improvement; Deaf Education Reform and Improvement; Children’s Safety and Success(preventing child abuse and neglect); Early Hearing Detection and Intervention Systems; and Parent/Professional partnerships in Quality Improvement processes.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Carrie Davenport
(), The Ohio State University College of Medicine, carrietdavenport@gmail.com;
Carrie Davenport, Ph.D., is a Postdoctoral Researcher in the Department of Otolaryngology at The Ohio State University Wexner Medical Center. Carrie is a teacher of the deaf by training with a Master's degree in Family-Centered Early Education from Gallaudet University. She earned her doctorate in special education at OSU in 2017. Prior to entering the PhD program at OSU, she was the Early Childhood Consultant for the Center for Outreach Services at the Ohio School for the Deaf. Carrie is a founding Board member of Ohio Hands & Voices. Her research interests include parental self-efficacy, parent-to-parent support, and parent-infant interaction. She is especially interested in building academic-community partnerships with families with deaf/hard-of-hearing children and other stakeholders.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.