19th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 8-10, 2020 • Kansas City, MO
3/10/2020 | 3:45 PM - 4:45 PM | The Perks of Parent to Parent Support and Communication Choices: Real life sharing – before and after Guide By Your Side Parent Panel | Atlanta
The Perks of Parent to Parent Support and Communication Choices: Real life sharing – before and after Guide By Your Side Parent Panel
Parents who find out their child is deaf or hard of hearing are faced with numerous decisions they must make. One of the most important yet daunting is that of communication. Depending on who a parent speaks with, will depend on what advise they receive. This panel will show the importance of early referral to a parent-based support organization such as Guide By Your Side. Panelists will talk about what their initial experience about making a communication choice was before they were paired with a Parent Guide through the IL Guide By Your Side Program and what they felt after they began working with a Parent Guide. The major difference was that CHOICE became CHOICES and they were empowered to make the choice that was right for them at that time and the ever-important knowledge that it’s okay to change if that initial choice isn’t working.
- Attendees will hear from parents who benefited from parent to parent support from the start
- Attendees will learn how parents receive unbiased communication information
- Attendees gain insight on the parent perspective and what it's like to raise children who are DHH
Presentation:
21060_12595AndreaMarwah.pdf
Handouts:
Handout is not Available
Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference
Presenters/Authors
Carrie Balian
(), IL Hands & Voices Guide By Your Side, IL School for the Deaf, ilhvgbys@gmail.com;
Carrie Balian is the mother of five children. Her oldest, Jack, was born deaf. Carrie and her family reside in Island Lake, IL. She is the Coordinator of the Guide By Your Side program in Illinois. Carrie has presented to groups nationwide and co-authored several publications including the NCHAM e-book. Carrie has served or is currently serving as a board member for the Illinois Genetic & Metabolic Diseases Advisory Council, , an editor for the JEHDI publication and participated on the Illinois Universal Newborn Hearing & Screening Advisory Board and Illinois Deaf Task Force. She also participated as a parent professional on the NICHQ national and statewide learning collaborative teams. Carrie has been recognized and awarded both nationally and locally for her support, commitment and leadership in the field. Her educational background includes a Bachelor’s degree in Marketing and Management.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Andrea Marwah
(), IL Hands & Voices Guide By Your Side, executivedirector@ilhandsandvoices.com;
Andrea Marwah received her BA degree in Psychology from North Central College. Since her daughter was diagnosed with hearing loss in 2002, she has taken a special interest in educating parents and professionals on matters concerning ADA, IDEA - special education rights, and advocacy for students who are Deaf/Hard of Hearing or DeafBlind. Andrea presents both locally and nationally on advocacy and IDEA; deafness with other disabilities; impact of deafness; socialization and many other topics surrounding parenting and working with children who are Deaf/Hard of Hearing. She works for the Illinois School for the Deaf as an outreach trainer/consultant for families and professionals who work with children who are deaf, hard of hearing, blind, low vision or deaf-blind. She is also a parent advocate supporting families in Illinois at their child’s IEP meeting or behind the scenes preparing them to attend the meeting and advocate themselves. Andrea is the Executive Director at Illinois Hands & Voices and has been a leader with them since 2010 and is a national trainer for the Hands & Voices ASTra Training Program and a member of the Hands & Voices speakers bureau. She works closely with Designated Service Coordinators providing group training and individual consulting. These are trained individuals who work directly with infants and toddlers in Illinois birth to three who have a diagnosis involving vision, hearing or a combination of both in her state early intervention program. Andrea works as a liaison with the Early Intervention Training Program on issues surrounding deafness and hearing loss. She sits on numerous committees both locally and nationally. Andrea also served for six years on the Advisory Commission on Disabilities in her hometown of Naperville, where she lives with her husband Ajay and children Samantha, Julia and Andrew.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Lydia Hernandez
(), Guide By Your Side, hernandezlydiaj@gmail.com;
Parent Guide – Brown & Statewide
Lydia is the mother of three children one who has hearing loss. She assists
families as one of our Spanish speaking Parent Guides. Lydia and her family
live in Cook County.
ASHA DISCLOSURE:
Financial -
Nonfinancial -
Mariana Barquet
(), Indiana Hands & Voices, mbarquet@health.in.gov;
Mariana Barquet was born and raised in Mexico City, Mexico. She moved to the US in 2004 and married an Indiana native in 2005. She started working as the Hispanic Parent Guide in Indiana in 2015 and has served in that position since. She spearheaded the efforts to start the Educational Advocacy Program under Hands & Voices, ASTra (Advocacy, Support and Training) and became the ASTra Program Coordinator in April 2019, when the Program officially started to operate. Shortly after, she took over the position of the Guide By Your Side Program coordinator as the previous coordinator stepped down. As the Programs Coordinator she oversees all operations of the ASTra and GBYS Programs that provide Parent to Parent support for all families of newly identified children with hearing differences all the way to exit of High School.
She was awarded the National Early Hearing Detection & Intervention Family Leadership Award for improving the involvement of the Hispanic families with children with hearing difference in the Early Intervention Program by 11% over this population growth in the State of Indiana through the last 4 years grant period under CDC requirements. She has served in the Hands & Voices Latino Council since 2016 and has presented in the EHDI National Conference, Hands & Voices Leadership Conference, and several state conferences in Indiana.
She has a deep passion for supporting families through the different stages of the educational process that often require the parents to become skilled advocates.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Jessica Quiros
(), aldkjflajdlkj, abc@yahoo.com;
asdlfjkalskjdfl
ASHA DISCLOSURE:
Financial -
Nonfinancial -