19th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 8-10, 2020 • Kansas City, MO
3/10/2020 | 1:45 PM - 2:45 PM | Understanding Hearing Priority for Parents of Children with Down Syndrome | New York B
Understanding Hearing Priority for Parents of Children with Down Syndrome
Down Syndrome (DS) may be one of the more common cases encountered by pediatric audiologists when serving children who are Deaf or Hard-of-hearing (DHH) with multiple disabilities. Currently, no studies have explored how the complexities of DS, specifically, change how parents prioritize hearing care. Aspects of psychosocial well-being, however, have been found to correlate with how parents adapt to their child's DS diagnosis, which has implications for how parents set achievable goals and follow through on interventions (Truitt, Biesecker, Capone, Bailey, & Erby, 2012). Understanding the impact of challenges associated with caring for a child who is DS on hearing care priority can illuminate and emphasize the need for a patient-centered approach to care to meet the diverse needs of families.
Even with limited research regarding the challenges faced by parents of children who are DHH with multiple disabilities, or parents of children who are DS, prior research has clearly identified challenges faced by parents of children who are DHH alone. Given the need to further understand parent challenges when caring for children who are DHH with multiple disabilities and how those challenges impact consistent hearing health care, the purpose of the study to be presented was to develop a grounded theory to explain the decision-making process parents experience when determining how they prioritize hearing care for children who are DHH with Down syndrome. The outcomes of the study will provide new information and may be used to improve care provided to this population through patient-centered practices to meet parent needs.
- Describe influences for hearing care priority among parents of children with Down syndrome.
- Explain implication for low hearing care priority on speech-language and other developmental outcomes
- Describe counseling strategies to support parents of children with Down syndrome.
Presentation:
21060_12528JJWhicker.pdf
Handouts:
Handout is not Available
Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference
Presenters/Authors
JJ Whicker
(), Primary Children's Hospital, jj.whicker@imail.org;
John (J.J.) Whicker is a pediatric audiologist and clinical researcher at Primary Children’s Hospital His research lines focus on the impacts and implications for patient- and family-centered delivery models for audiology, the quality of school-to-work transition for youth with hearing loss, and the impact to hearing care when children have multiple disabilities.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Nicole Pearson
(), Utah State University, njpearson@aggiemail.usu.edu;
Nicole Pearson is a 3rd-year audiology student at Utah State University. Her current research focuses on early intervention for bilingual children at risk for language delay, implementation of counseling in audiology, and prevalence/effects of hearing loss in adolescents.
ASHA DISCLOSURE:
Financial -
Nonfinancial -
Karen Munoz
(), Utah State University, karen.munoz@usu.edu;
Karen Muñoz is department head and professor of audiology at Utah State University in the Department of Communicative Disorders and Deaf Education. She is also associate director of the National Center for Hearing Assessment and Management. Her research focus is in the area of childhood hearing loss.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.