15th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 13-15, 2016 • San Diego, CA
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Congenital CMV Awareness in the United States
Congenital cytomegalovirus, or CMV, affects one in 750 babies and is the leading non-genetic cause of hearing loss. However, very few adults are aware of CMV and the CDC-recommended precautions to take during pregnancy to prevent congenital CMV infections.
Awareness of CMV among adults in the United States was assessed via the HealthStyles survey in 2005, 2010 and 2015. Despite information produced by the CDC about CMV on its website and the American College on Obstetrics and Gynecology recommending counseling on CMV, the awareness rate of CMV in the United States is decreasing.
This poster will present data from the 2005, 2010, and 2015 HealthStyles surveys including an analysis of what factors impact the likelihood that someone has heard of CMV. It discusses the implication of raising CMV awareness and the necessity of educating women about CMV so they can prevent disabilities by exercising precautions to prevent transmitting CMV to their unborn baby.
- Describe the trend of CMV awareness in the United States over the past three years.
- Name the steps the CDC recommends pregnant women take to prevent transmitting CMV to an unborn baby.
- Name one barrier to CMV awareness.
Presentation:
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Presenters/Authors
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Sara Doutre
(Primary Presenter), NCHAM, saradoutre@gmail.com;
Sara Doutre is a PHD student studying sociobehavioral epidemiology at Utah State University. She has an MA in education policy studies and a BS in elementary and special education. A former special education teacher and education policy professional, he currently consults with state departments of education and health on special education policy. Her four-year-old daughter is deaf due to congenital cytomegalovirus.
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No relevant financial relationship exist.
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No relevant nonfinancial relationship exist.
Janelle Greenlee
(Co-Presenter), National CMV Foundation, janelle@stopcmv.org;
Janelle Greenlee is the mother of four children, including a set of 8-year-old twin daughters born with congenital CMV. She is a co-founder of The National CMV Foundation, the world's largest non-profit organization dedicated to preventing and eliminating congenital CMV and improving the lives of all people affected by congenital CMV. For more information, visit nationalcmv.org
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Karl White
(Author), Utah State University, karl.white@usu.edu;
Dr. White is a Professor of Psychology, the Emma Eccles Jones Endowed Chair in Early Childhood Education, and the founding Director of the National Center for Hearing Assessment and Management. He has been the PI or Co-PI for over $50 million of competitively awarded research. His work has been recognized with awards from such diverse organizations as the Deafness Research Foundation, the American Association for Speech Language and Hearing, The Swedish Society of Medicine, and the Alexander Graham Bell Association for the Deaf. He has hundreds of publications and presentations at scholarly meetings, and has been an invited speaker to more than 35 countries. He also serves on many national and international advisory groups for organizations such as the United States Department of Health and Human Services, the World Health Organization, the Institute of Medicine, and the American Academy of Pediatrics.
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