15th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 13-15, 2016 • San Diego, CA
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Development of an EHDI Resource Guide for Spanish-Speaking Families of Children with Hearing Loss in North Carolina
Track: EHDI Program Enhancement, Family Perspectives and Support
Authors: Sarah H. Webster, Lucia Quiñonez Sumner & Jackson Roush
Many Spanish-speaking families in North Carolina report challenges related to accessing pediatric audiology services when their infant is referred from newborn hearing screening. These challenges are frustrating to families and they increase the risk of loss to follow-up or delayed diagnosis. Barriers to timely service delivery include lack of interpreters and reliable transportation, health insurance issues, lack of specialized audiology services in rural areas, and cultural differences. An anonymous survey (Qualtrics) was completed by three pediatric audiology centers across the state and approximately 20 EHDI stakeholders to determine the most significant barriers to audiology services encountered by Spanish-speaking families. The audiologists and EHDI stakeholders were also asked to indicate what information they felt would be most helpful in a resource guide for Spanish speaking families. Based on survey responses combined with the authors’ observations and professional experience, an EHDI Resource Guide for Spanish-Speaking Families is being developed to provide information on important topics for families: where to go for assessment and follow-up, understanding hearing loss and technology, communication options, and resources specific to the Spanish speaking population (e.g., interpreting and transportation services, EHDI phone tree for Spanish-speakers, etc.). The guide will be produced in cooperation with the North Carolina EHDI program and NC-LEND in hard copy and on a CD, and it will be published on the NC-EHDI website for families with access to the internet.
- Describe barriers to timely audiologic care encountered by Spanish-speaking families of children with hearing loss in North Carolina.
- Identify strategies for improving access to audiology services.
- Describe the components of a resource guide for Spanish-speaking families.
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Presenters/Authors
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Sarah Webster
(Primary Presenter), University of North Carolina at Chapel Hill, sarah_webster@med.unc.edu;
Sarah completed her BS in Communication Disorders and Spanish at the University of Virginia and is now a full-time AuD student at UNC Chapel Hill. She is also a LEND trainee in audiology with a special interest in early hearing detection and intervention. Sarah is planning to pursue employment as a pediatric audiologist when she graduates in May, 2017.
ASHA DISCLOSURE:
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No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Lucia Quinonez Sumner
(Co-Presenter), EICDHH, lucia.sumner@esdb.nc.gov;
Lucia was already a teacher of young children when she came to the US from Ecuador. Holds a masters degree in Special education and currently works as Parent Infant educator for the North Carolina Early Intervention for Children who are Deaf or Hard of Hearing. She has presented at the UNCC Annual Child and
Family Development Conference and at early intervention staff meetings.
ASHA DISCLOSURE:
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Jackson Roush
(Co-Presenter), University of North Carolina - Chapel Hill, jroush@med.unc.edu;
Dr. Roush is Professor and Director of the Division of Speech and Hearing Sciences, University of North Carolina School of Medicine, Chapel Hill, NC. He also serves as Director of the North Carolina LEND program and is co-chair of the NC EHDI Advisory Board.
ASHA DISCLOSURE:
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