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ABSTRACT INFORMATION
Title: 'Differences Among Strategies for Implementation of Medical Home Report to Reduce EHDI Loss to Follow Up'
Track: 6 - Follow-up, Tracking and Data Management
Keyword(s): Loss to Follow up, Parent, Tracking, Reports, Medical Home, PDSA
Learning Objectives:
  1. Analyze a range of different implementation strategies of EHDI reports.
  2. Recognize the need for parent consultants on behalf of medical home to increase follow up care.

Abstract:

Rhode Island EHDI data is integrated with other children’s preventive health data in an information system called KIDSNET. KIDSNET also serves as an immunization registry so that when providers report immunizations to the registry, the child can be linked to a primary care provider. This created an opportunity for the Rhode Island EHDI program to create reports of children in every medical home who are in need of newborn hearing screening follow-up. Rhode Island EHDI looked at three strategies for implementing this report. The first strategy was to train a parent consultant from the Rhode Island Parent Information Network to use the report to reach out to families on behalf of the medical home to facilitate follow-up. The second was to train a medical home staff member to do the same. The third was to simply mail the report to the medical home. Using a plan-do-study-act (PDSA) model, these strategies were studied in three primary care practices that were similar in size and demographics. Results and description of the process will be presented. Early results show highest rates of follow-up in the practice with the parent consultant, followed by the trained office staff.
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PRESENTER(S) / AUTHOR(S) INFORMATION
Elsbeth Brown - Co-Presenter
RI Parent Information Network
     Credentials: AS
      Elsbeth is the Family Resource Specialist for the Rhode Island Hearing Assessment program. Elsbeth is the Mom of two snd has a son who has profound hearing loss.
      ASHA DISCLOSURE:

Financial -

Nonfinancial -
Liza Then - Co-Presenter
Rhode Island Department of Health
     Credentials: N/A
      Liza is the EHDI coordinator for Rhode Island.
      ASHA DISCLOSURE:

Financial -

Nonfinancial -
Betty Vohr - Co-Presenter
Women & Infants Hospital
     Credentials: MD
     Other Affiliations: Association of University Centers on Disabilities.
      Betty R. Vohr, MD has been the director of Women & Infants Hospital’s Neonatal Follow-up Clinic since 1974 and medical director of the Rhode Island Hearing Assessment Program since 1990. She has been the national coordinator of the National Institute of Child Health and Human Development Neonatal Research Network follow-up studies since 1990. Dr. Vohr’s primary clinical and research interests focus on improving the long-term outcomes of high-risk premature infants and infants with hearing loss. Dr. Vohr is currently participating in studies investigating the outcomes of premature infants and the outcomes of infants with hearing loss. She has published 200 manuscripts in peer-reviewed journals, as well as numerous textbook chapters and has been an invited speaker throughout the country and the world. Dr. Vohr played an instrumental role in the development of the Rhode Island Hearing Assessment Program (RIHAP), which was established in 1990. Based at Women & Infants, RIHAP became the first public health program in the United States to achieve universal newborn hearing screening for all infants born in Rhode Island. After the project gained momentum, Dr. Vohr and her colleagues were invited to present the findings at an NIH Consensus Development Conference, which subsequently recommended that all babies in the United States be screened for hearing loss. She is a recipient of the Antonia Brancia Maxon award for EHDI Excellence, has served as a member of the Joint Committee on Infant Hearing, and recently received the Stan and Mavis Graven’s Leadership Award for Outstanding Contributions to Enhancing the Physical and Developmental Environment for High-Risk Infants and their Families.
      ASHA DISCLOSURE:

Financial -

Nonfinancial -
Sherri Lee Moniz - POC,Co-Presenter
RHODE ISLAND HEARING ASSESSMENT PROGRAM
     Credentials: Doctor of Audiology Au.D CCC-A, F-AAA
      Sherri Lee Moniz, Au.D, is the Program Coordinator for the Rhode Island Hearing Assessment Program. Her duties include developing and managing the clinical components of the hospital and state-wide RIHAP hearing screening program for infants. She interprets hearing screenings conducted throughout the state, provides patient referral sources and coordinates audiology networks. She oversees staff as well as technical staff at screening sites throughout the state of Rhode Island. She facilitates the educational annual RIHAP seminar, coordinates research activities and interfaces with statewide agencies such as Department of Health, Early Intervention, Newborn Screening Task Force, EHDI and Kidsnet. Prior to her position she was a clinical audiologist in the Department of Audiology at Women & Infants Hospital supervising the hearing screening staff, conducting central auditory processing testing, diagnosing and managing hearing loss in the pediatric and geriatric populations . She received her clinical doctorate from University of Pittsburgh in April 2008
      ASHA DISCLOSURE:

Financial - No relevant financial relationship exist.

Nonfinancial - No relevant nonfinancial relationship exist.
Richard Lupino - Co-Presenter
RI Dept of Health
     Credentials: AS
      Rich recieved an AS degrees from Community College of RI in Chemistry and an AS from New England Tech in Computer Science. He currently is the data manager for the Rhode Island EHDI data, as well as for other newborn and early childhood datasets.
      ASHA DISCLOSURE:

Financial - No relevant financial relationship exist.

Nonfinancial - No relevant nonfinancial relationship exist.