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ABSTRACT INFORMATION
Title: 'Infant Hearing Decisions: Feedback From Parents and Professionals'
Track: 7 - Family Perspectives and Support
Keyword(s): family support, decision-making, technology, communication, education
Learning Objectives:
  1. Apply the 5 step decision making model to EHDI topics
  2. Use the DVD (Infant Hearing Decisions) to facilitate early decision making

Abstract:

Timely early intervention for infants with hearing loss maximizes the potential for successful speech, language, literacy and academic outcomes. Family training and practice in decision-making strategies can facilitate the intervention process and reduce intervention delays. The goal of this project was to evaluate a DVD that is designed to help family members develop and practice essential decision making skills related to communication, technology, and education options for their child. The DVD, called Infant Hearing Decisions, uses an innovative approach for shared learning among extended family members. The majority of the content is delivered by parents telling stories about their own personal experience. The DVD consists of six chapters (a) Introduction, (b) Making Decisions, (c) Communication, (d) Technology, (e) Education and (f) Next Steps. Infant Hearing Decisions is narrated by a speech-language pathologist, Greg; and a parent of a child with hearing loss, Verda. The two narrators guide other parents through a five step process for systematic decision-making regarding choices available and appropriate for their individual child. The narrators discuss Verda’s journey as they guide parents through the decision making process regarding communication, technology and educational options. Parents and family members are encouraged to take into consideration their individual child’s needs, consider all the issues, look at appropriate alternatives, make a decision, implement it, and monitor progress to guide future decisions. A pilot study to evaluate the concept, potential efficacy, usability and functionality of the DVD has been completed. Parents and professionals participated in the assessment of this early intervention tool and rated the usability of the DVD. Strengths and weaknesses of the concept and format will be presented, along with data relative to the potential efficacy of this tool. Free copies of the DVD will be available onsite during the presentation.
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PRESENTER(S) / AUTHOR(S) INFORMATION
Mary Liz Crigler - Primary Presenter
UAMS
     Credentials: B.S. Communication Science and Disorders; current Au.D. student
      Mary Liz Crigler is a 2nd year Au.D. student at the University of Arkansas for Medical Sciences. The pilot study for the usability and efficacy of the Infant Hearing Decisions DVD was completed as her capstone research project for her degree. Nannette Nicholson and Patti Martin served as her research mentors.
      ASHA DISCLOSURE:

Financial - No relevant financial relationship exist.

Nonfinancial - No relevant nonfinancial relationship exist.
Nannette Nicholson - Co-Presenter,POC
UAMS/UALR
     Credentials: Ph.D.
     Other Affiliations: ACH
      Nannette Nicholson, PhD is a Professor and Interim Chair of the Department of Audiology and Speech Pathology at the University of Arkansas for Medical Sciences/University of Arkansas at Little Rock. She also has a clinical staff appointment at Arkansas Children's Hospital. Her primary research area is early intervention and pediatric audiology.
      ASHA DISCLOSURE:

Financial -

Nonfinancial -
Patti Martin - Co-Presenter
Arkansas Children's Hospital
     Credentials: Ph.D. CCC-A F-AAA
     Other Affiliations: NCHAM
      Patti Martin, Ph.D., is the Director of Audiology and Speech Language Pathology at Arkansas Children’s Hospital (ACH). Her areas of expertise include infant screening/assessment, family support and program development. Her efforts with infant hearing screening began with a collaboration project to investigate the efficacy of TEOAEs as a newborn screening tool in the early 1990s and continue through her work on the board of the American Speech-Language-Hearing Association Special Interest Division on Childhood Hearing Disorders and as the Family Support Consultant for NCHAM. She has chaired the Arkansas Board of Examiners in Speech Pathology and Audiology, the Arkansas Universal Newborn Hearing Screening, Tracking and Intervention Boardand the Natinoal Investing in Family Support Conference for the past four years. Dr. Martin’s ongoing passion centers around how professionals can help support families in improving the outcomes of children with hearing loss.
      ASHA DISCLOSURE:

Financial - No relevant financial relationship exist.

Nonfinancial - No relevant nonfinancial relationship exist.