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ABSTRACT INFORMATION
Title: 'Evaluation of Association between Prenatal HIV Exposure and Congenital Hearing Loss: Data Source and Follow-up Timing Issues' Track: 9 - Program Evaluation and Quality Improvement Keyword(s): congenital hearing loss, HIV, surveillance Learning Objectives: Evaluate when it is appropriate to utilize surveillance data to assess hearing loss among children born to HIV-positive mothers. Discuss issues related to data quality, timing of follow-up, and data coverage when using surveillance data to assess associations between perinatal HIV and congenital hearing loss. Conclude whether or not use of multiple linked surveillance data is appropriate when evaluating the association between prenatal HIV exposure and congenital hearing loss. Abstract: Studies have shown that children exposed to HIV perinatally are at an increased risk for congenital hearing loss, particularly those who are HIV-positive. Hearing loss impedes development of language skills, leading to delayed learning and troubled communication. Previous studies have used clinic or hospital-based data to evaluate the association between HIV exposure and hearing loss. However, little is known about using surveillance data to evaluate the effects of prenatal HIV on congenital hearing loss. The objective of this study is to define if use of multiple surveillance data and the linkage is appropriate when conducting an association between prenatal HIV exposure and congenital hearing loss. Findings from the study are expected to provide researchers and health professionals helpful information when surveillance data are used to assess hearing loss among children born to HIV-positive mothers. Three surveillance data including Early Hearing Detection and Intervention, HIV, and birth records data, were linked and analyzed. The data included infants born within the state of Louisiana between 2005 and 2012. Infants to mothers who were not Louisiana residents at birth were excluded. SAS 9.2 and Linkpro 3.0 were used to link the data applying probabilistic records linkage method with manual case review. Matching was achieved through two rounds of data linkages based upon the child’s first name, last name, soundex of first and last name, and date of birth and then using the mother’s first name, last name, soundex of first and last name, date of birth, and social security number. Findings from data linkages and analyses using the linked data will be presented in the results of the presentation. Issues related to data quality, timing of follow-up, and data coverage, and how to use surveillance data to assess associations between perinatal HIV and congenital hearing loss will be discussed. Presentation: This presentation has not yet been uploaded or the speaker has opted not to make the presentation available online. Handouts: Handout is not Available
PRESENTER(S) / AUTHOR(S) INFORMATION
Denver Bailey - Author Tulane University      Credentials: MPH Candidate, December 2013       Denver Bailey received a B.A. in Economics from the University of North Carolina-Wilmington in 2010 and is an MPH-Epidemiology Candidate for the December 2013 term at Tulane University. Her research interests include perinatal HIV and health inequalities.       ASHA DISCLOSURE: Financial - No relevant financial relationship exist. Nonfinancial - No relevant nonfinancial relationship exist. Wendy Jumonville - Author Louisiana EHDI Program      Credentials: Audiologist, M.S., CCC-A       Wendy A. Jumonville received her Master of Science degree from Purdue University. She has worked as a Pediatric Audiologist at Denver Children’s Hospital, The Louisiana School for the Deaf, and is currently on faculty at LSU BR in The Department of Communication Sciences and Disorders. She currently provides contract services to EHDI as an Outreach Specialist.       ASHA DISCLOSURE: Financial - No relevant financial relationship exist. Nonfinancial - No relevant nonfinancial relationship exist. Melinda Peat - Author Louisiana EHDI      Credentials: MS in Audiology CCC-A      Other Affiliations: ASHA, Louisiana Speech Language Hearing Association       State Audiology Coordinator, Hearing, Speech and Vision Program (HSV), Children’s Special Health Services (CSHS), Office of Public Health (OPH), Department of Health and Hospitals       ASHA DISCLOSURE: Financial - Nonfinancial - Tri Tran - POC,Primary Presenter,Author LSUHSC SCHOOL OF MEDICINE IN NEW ORLEANS      Credentials: MD MPH      Other Affiliations: LSUHSC School of Medicine, Department of Pediatrics       Dr.Tri Tran, MD, MPH       ASHA DISCLOSURE: Financial - Nonfinancial - Mary Jo Smith - Author Louisiana DHH OPH CSHS Early Hearing Detection and Intervention Program      Credentials: BS       Mary Jo Smith, BS. She is a LA EHDI Tracking Specialist       ASHA DISCLOSURE: Financial - Nonfinancial - Jeanette Webb - Author Louisiana DHH OPH CSHS Early Hearing Detection and Intervention Program      Credentials: M. ED       Janette Webb M.ED       ASHA DISCLOSURE: Financial - No relevant financial relationship exist. Nonfinancial - No relevant nonfinancial relationship exist. Terri Ibieta - Author Louisiana DHH OPH CSHS Early Hearing Detection and Intervention Program      Credentials: M. Ed       Terri Mohren M.Ed. She is a LA EHDI Program Manager       ASHA DISCLOSURE: Financial - Nonfinancial - Jessica Fridge - Author Louisiana DHH OPH STD/HIV Program      Credentials: MSPH       Jessica Fridge, MSPH       ASHA DISCLOSURE: Financial - No relevant financial relationship exist. Nonfinancial - No relevant nonfinancial relationship exist. DeAnn Gruber - Author Louisiana DHH OPH STD/HIV Program      Credentials: PhD       DeAnn Gruber, PhD       ASHA DISCLOSURE: Financial - No relevant financial relationship exist. Nonfinancial - No relevant nonfinancial relationship exist. Susan Berry - Author Louisiana DHH OPH CSHS Program      Credentials: MD, MPH       Susan Berry, MD, MPH       ASHA DISCLOSURE: Financial - Nonfinancial -