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ABSTRACT INFORMATION
Title: 'Collaboration and Partnership is the Beginning to a Data Exchange Between EHDI and Vital Records' Track: 6 - Follow-up, Tracking and Data Management Keyword(s): Data-Exchange Vital-Records Collaboration Partnership Learning Objectives: Describe the importance of establishing partnerships between the EHDI program and electronic vital records system; find champions, create collaborative environment. Summarize how to leverage EHDI resources, including the hearing database vendor, CDC grant funds, and technology experts to implement data integration. Describe how to develop matching algorithms between electronic birth records and hearing data management systems. Abstract: Collaboration and Partnership is the Beginning to a Data Exchange Between EHDI and Vital Records Track: Follow-up, Tracking and Data Management Authors: Sondi Aponte, Janzelle Willars, Randi Winston, Francis Caglio, James Fritzler Affiliations: EHDI Program Arizona Department of Health Services, Utah State University Presenters: Francis Caglio, Janzelle Willars The information contained within a vital records database can be a wealth of information for an EHDI program. The challenge to the EHDI program is developing a partnership and a collaborative environment between the EHDI program and the Vital Records program. Once a relationship is established then the technology challenges can be overcome with collaborative efforts. The State of Arizona EHDI program and the Arizona Office of Vital Records have created such a partnership and are now exchanging vital records data on a daily basis. The exchange of data has reduced the data entry efforts for hospitals and the state follow-up program, increased the completeness of data and synchronized demographic information between the EHDI database and Vital Records database. There were several technological hurdles that had to be overcome so that data from the vital records database could be imported into the EHDI database; for example, matching a baby in the EHDI database with the same baby in the vital records database. The benefits are numerous but the major advantage is complete baby, mother and father demographics, high risk status at birth, and mother and father contact information. Other benefits include the addition of natality and mortality information which helps in the case management of high risk infants. By creating a collaboration and partnership with vital records the EHDI program can improve data quality, meet expectations of stakeholders and help families receive necessary and timely services. Presentation: This presentation has not yet been uploaded or the speaker has opted not to make the presentation available online. Handouts: Handout is not Available
PRESENTER(S) / AUTHOR(S) INFORMATION
Sondi Aponte - POC,Co-Presenter,Author Az Dept of Health Services      Credentials: Office of Newborn Screening Quality Improvement, Education and Outreach Manager       With 15 years’ experience in technology, program development, and training, Sondi Aponte is the Quality Improvement, Education and Outreach Manager with the Office of Newborn Screening (ONBS) program at the Arizona Department of Health Services. In that capacity, she develops quality assurance measures, monitors program outcomes, oversees hearing grants, and is the project lead on the CDC Data Integration grant. Program quality improvement responsibilities include data evaluation and analysis, report creation and overall data integrity. Partnership development and enhancement are crucial components of her job, representing the ONBS with The Az. Academy of Pediatrics, The Arizona Perinatal Trust and The EAR Foundation of Arizona (EFAz) among others.Sondi develops and implements training materials and educates clinical providers and families on newborn screening best practice.       ASHA DISCLOSURE: Financial - No relevant financial relationship exist. Nonfinancial - No relevant nonfinancial relationship exist. Randi Winston - Author NCHAM, The EAR Foundation of Arizona, The Arizona Department of Health Services      Credentials: Au.D, CCC-A      Other Affiliations: Member ASHA, AAA, ArSHA       Randi Winston has been a consulting audiologist for The EAR Foundation of Arizona (EFAZ), the Arizona Department of Health Services and Arizona's State EHDI Program since 1998. Her role has primarily involved working with hospital based newborn hearing screening, early childhood hearing screening programs statewide. She continues to provide ongoing training and technical assistance with an emphasis on program quality. She serves on the National Center for Hearing Assessment and Management (NCHAM) Technical Assistance Network, assisting states in Region X in their EHDI efforts.       ASHA DISCLOSURE: Financial - No relevant financial relationship exist. Nonfinancial - No relevant nonfinancial relationship exist. Francis Caglio - Co-Presenter,Author Arizona Department of Health Services      Credentials: MBA, BS, Computer Information Systems       Francis Caglio is an information technology consultant to the Arizona Department of Health Services with over 30 years experience in the design and implementation of software solutions. Francis has extensive knowledge and experience in the design of software solutions for the collection of vital statistics data. Recently, Francis designed and implemented a State wide, web based, birth registration application for the Arizona Office of Vital Records. Francis is also an adjunct facility member of Phoenix College teaching computer information technology.       ASHA DISCLOSURE: Financial - Receives Consulting fee for Consulting from Arizona Department of Health Services.   Nonfinancial - No relevant nonfinancial relationship exist. Janzelle Willars - Co-Presenter,Author AZ Department of Health Services      Credentials: Janzelle Willars, Data Analyst       With 20 years of experience in data management and reports development, Janzelle is a Data Analyst with the newborn screening program at the Arizona Department of Health Services. In that capacity, she maintains the integrity of the hearing screening database; on a daily basis runs the merge process from Vital Records into the hearing screening database; develops reports for hospitals, EHDI partners and stakeholders using Microsoft Access or Excel; and creates the quarterly Hearing Screening Scorecard report in Crystal Reports to measure quality indicators for hospitals. She has created Microsoft Access databases with data entry forms for the newborn hearing screening Follow Up team, as well as databases to track such things as Open Cases, Validation of Timely Data Input by the hospitals, and Possible Duplicates in the hearing screening database. She works under the CDC EHDI grant and her position is 100% funded by that grant.       ASHA DISCLOSURE: Financial - No relevant financial relationship exist. Nonfinancial - No relevant nonfinancial relationship exist. James Fritzler - Co-Presenter,Author Utah State University      Credentials: BS, Business Information Systems      Other Affiliations: National Center for Hearing Assessment and Management       James Fritzler is a Project Manager, Analyst and Software Developer with 13 years of EHDI Data Management experience. He has directed and managed iterative software development for complex, specialized medical data management systems. In doing this work he has collaborated with eight State Departments of Health in implementing data surveillance systems and leveraged SQL Server and the Microsoft .Net Framework to build Web-based and Windows-based data management software. Additionally, his consultation with world-wide screening equipment manufacturers has established and improved hearing screening data integration.       ASHA DISCLOSURE: Financial - No relevant financial relationship exist. Nonfinancial - No relevant nonfinancial relationship exist.