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ABSTRACT INFORMATION
Title: 'Written Resources for Parents of Young Children Recently Diagnosed with Hearing Loss' Track: 6-Family Issues Audience: Primary Audience: State Health Department Secondary Audience: Audiologist Tertiary Audeince: Keyword(s): parents, resources, intervention Learning Objectives: 1. Describe the format and distribution of a state resource on hearing loss for families 2. Explain the benefit parents report from having a written resource on hearing loss and intervention 3. Understand what parents report they need for future resources on hearing loss Abstract: Following the diagnosis of hearing loss for a young child, parents are asked to make a variety of decisions concerning their child’s future. These choices are stressful for many parents who typically have no previous knowledge about hearing loss and with limited information available to them concerning possible options. Parents have continued to request information, specifically written information, addressing topics on hearing loss and intervention. However, parent resources continue to be scarce. To address the need, the Utah Department of Health developed the Interactive Notebook for Families With a Young Child Who Is Deaf or Hard of Hearing in the fall of 2009. Parents were surveyed to investigate the benefit of such a resource in increasing parents’ knowledge about hearing loss and providing information families are not receiving from other sources. The results of this survey will be presented to describe parents reported benefit as well as needs for further information in the future. Presentation(s): Not Available Handouts: Not Available
SPEAKER INFORMATION
PRESENTER(S): Megan Mansfield - Utah State University      Credentials: B.S., Au.D. Candidate       Megan Mansfield is a third year audiology doctoral student at Utah State University. She has received an emphasis in pediatrics and especially enjoys working with children with cochlear implants. Additionally, she is involved in an Auditory Learning and Spoken Language program at Utah State University focused on training students in Auditory-Verbal therapy for children with hearing aids and cochlear implants. As a trainee in this program, she has fostered further interest in the habilitation of listening and language for children with hearing loss. Megan looks forward to a long future in the exciting field of pediatric audiology. Richard Harward - Utah Department of Health, Early Hearing Detection and Intervention Coordinator      Credentials: Au.D., CCC-A       Dr. Harward is currently the Director of the Early Hearing Detection and Intervention (EHDI) Program in Utah and the Program Manager for the Utah Department of Health's Specialty Services Program within the Children with Special Health Care Needs Bureau. He is also the Program Manager for the UDOH Child Health Advanced Records Management Project (CHARM), which involves the development of an integrated data sharing network to track and monitor outcomes for Utah children and their families. His background includes nearly three decades in clinical and administrative positions at Primary Children's Medical Center, including directing and managing the Speech and Hearing Department, the Medical Rehabilitation Program, and as the Assistant Administrator for Hospital Operations. He has an adjunct appointment in the Communicative Disorders Department at Utah State University, and an auxiliary faculty appointment at the University of Utah School of Medicine. Karen Munoz - Utah State University      Credentials: Associate Professor      Other Affiliations: NCHAM       Karen Muñoz is an associate professor of audiology at Utah State University in the Department of Communicative Disorders and associate director of the National Center for Hearing Assessment and Management. Her research focus is in the area of childhood hearing loss.   AUTHOR(S): Megan Mansfield - Utah State University      Credentials: B.S., Au.D. Candidate       BIO: Megan Mansfield is a third year audiology doctoral student at Utah State University. She has received an emphasis in pediatrics and especially enjoys working with children with cochlear implants. Additionally, she is involved in an Auditory Learning and Spoken Language program at Utah State University focused on training students in Auditory-Verbal therapy for children with hearing aids and cochlear implants. As a trainee in this program, she has fostered further interest in the habilitation of listening and language for children with hearing loss. Megan looks forward to a long future in the exciting field of pediatric audiology.