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ABSTRACT INFORMATION
Title: 'Hearing Loss and the Medical Home: Families, Providers and Community Agencies' Track: 4-Medical Home Audience: Primary Audience: Medical Provider Secondary Audience: Non-Profit Agency Tertiary Audeince: Family of a child with hearing loss Keyword(s): Medical Home, Family Centered Care, collaboration, CSHCN Learning Objectives: Understand the implementation and workings of the pediatric medical home as it relates to children with hearing loss and special needs. Appreciate the attitudes of families, providers and community agencies regarding the medical home for CSHCN. Abstract: The Medical Home provides community based, family centered primary pediatric care for Children with Special Health Care Needs (CSHCN) including those with hearing loss. Information from a 2007 American Academy of Pediatrics CATCH (Community Access to Child Health) grant and practical experiences from an urban pediatric practice will be presented on how the Medical Home is implemented. Information from pediatric healthcare providers (HCP), families and community agencies reveal strengths and weaknesses of the model. Perceptions of the medical home for CSHCN in Queens, New York were assessed with a medical provider survey, questionnaire for families and semi-structured interviews with community agencies. Information from pediatricians showed a clear desire to provide family centered care and confidence in medical knowledge, skill and collaboration with subspecialists. There was less confidence in coordinating care with community agencies and schools, in providing psychosocial support and obtaining caregiver feedback. Additional barriers including lack of knowledge about community resources were found. Families of CSHCN had high levels of satisfaction with pediatricians and their medical expertise. There was less satisfaction with care coordination with specialists, schools and agencies. Half of the families felt they were coordinating care alone. Common themes of the community agencies were intermittent and incomplete collaboration with HCPs and concerns over time constraints, communication and cultural barriers. Parents were seen as their own advocates and care coordinators. HCPs were not seen as case managers and service coordination was seen as distinct from medical care. The medical records of 25 children with hearing loss were reviewed. Practical experience will be discussed as it relates to the working of a Medical Home. Specific discussion will include collaboration with subspecialists, case management, family support and coordination with Early Intervention, schools and community agencies. Concerns such as time constraints, office flow and reimbursement will be discussed as well. Presentation(s): Not Available Handouts: Not Available
SPEAKER INFORMATION
PRESENTER(S): Jack Levine - Kew Gardens Hills Pediatrics      Credentials: MD, FAAP      Other Affiliations: Assistant Clinical Professor of Pediatrics, Hofstra University School of Medicine       Dr. Levine is a community based general pediatrician in Queens, NY who has subspecialty certification in Developmental-Behavioral Pediatrics. He was the recipient of a 2008 American Academy of Pediatrics CATCH (Community Access to Child Health) grant and 2012 Healthy People 2020 grant. Dr. Levine is the director of the Center for Autism at Nassau University Medical Center. He is an Assistant Clinical Professor of Pediatrics at Hofstra University School of Medicine and a frequent speaker to both families and professionals. Dr. Levine is a member of the AAP Task Force on Improving the Effectiveness of Newborn Hearing Screening, Diagnosis and Intervention.   AUTHOR(S): Jack Levine - Kew Gardens Hills Pediatrics      Credentials: MD, FAAP      Other Affiliations: Assistant Clinical Professor of Pediatrics, Hofstra University School of Medicine       BIO: Dr. Levine is a community based general pediatrician in Queens, NY who has subspecialty certification in Developmental-Behavioral Pediatrics. He was the recipient of a 2008 American Academy of Pediatrics CATCH (Community Access to Child Health) grant and 2012 Healthy People 2020 grant. Dr. Levine is the director of the Center for Autism at Nassau University Medical Center. He is an Assistant Clinical Professor of Pediatrics at Hofstra University School of Medicine and a frequent speaker to both families and professionals. Dr. Levine is a member of the AAP Task Force on Improving the Effectiveness of Newborn Hearing Screening, Diagnosis and Intervention.