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ABSTRACT INFORMATION
Title: 'EHDI Data Integration and Linking across Heterogeneous Systems' Track: 5-Follow-up, Tracking, and Data Management Audience: Primary Audience: State Health Department Secondary Audience: Early Intervention Provider Tertiary Audeince: Audiologist Keyword(s): data management integration software linking Learning Objectives: 1. Gain an understanding of data integration concepts where data is linking across different medical database systems. 2. Have an introduction to the concept of data stewardship. 3. See that linked databases provide more accurate and up-to-date information than simply obtaining copies of data. 4. Be introduced to the CHARM record linking system. Abstract: Access to information across the many different kinds of medical databases has the potential to greatly improve EHDI data management and follow-up. It could improve tracking and follow up through the retrieval of shared data. Access to Vital Records and Part C databases would allow EHDI users to 'close the loop' of the hearing data lifespan. The cross referencing of the incoming data from birth registries and the monitoring of intervention activities after loss identification would allow EHDI users to see the entire patient record story. Other health support participants would also benefit from access to EHDI specific data. Access across disparate healthcare data systems comes with great challenges. A good solution maintains each data 'steward' as owner of their own specialized healthcare data system. Data ownership and maintenance is better handled by allowing the separate specialized systems to keep the data in their stewardship up to date and accurate. CHARM (Child Health Advanced Records Management) is a system designed to connect patient specific health care from heterogeneous systems by leveraging an advanced system of links and alerts. Instead of shifting copies of data across ownership boundaries patient data is linked between the various systems. This type of advanced record linking allows users to be confident that they have access to the current information; they aren't simply retrieving potentially stale data from a copied version. This presentation will introduce the CHARM approach to data integration. Presentation(s): Not Available Handouts: Not Available
SPEAKER INFORMATION
PRESENTER(S): Stephen Clyde - Utah State University      Credentials: PhD in Computer Science       Dr. Stephen Clyde is an associate professor at Utah State University in the Computer Science Department, specializing in software engineering; distributed systems; and integrated health-care information systems. Since joining USU in 1993, Stephen has been the principle investigator on dozens of research and development projects, including the National Scenic Byways websites (www.byways.org, www.bywaysonline.org), Utah's Child Advanced Record Management (CHARM) project, and a system that support automated data exchange between Earlier Intervention Part-C and Part-B. Prior to joining USU, Stephen worked in the software-development industry for 18 years in a variety of positions, including as Chief Scientist, Senior Systems Analyst, Software Architect. He helped start and manage several successful software-development businesses. Dr. Clyde earned both his B.S. and Ph.D. in Computer Science, with a specialization in Software Engineering, from Brigham Young University in Provo, Utah. He and his family live in the North Logan and enjoy traveling, camping, and cycling. James Fritzler - Utah State University      Credentials: BS, Business Information Systems      Other Affiliations: National Center for Hearing Assessment and Management       James Fritzler is a Project Manager, Analyst and Software Developer with 13 years of EHDI Data Management experience. He has directed and managed iterative software development for complex, specialized medical data management systems. In doing this work he has collaborated with eight State Departments of Health in implementing data surveillance systems and leveraged SQL Server and the Microsoft .Net Framework to build Web-based and Windows-based data management software. Additionally, his consultation with world-wide screening equipment manufacturers has established and improved hearing screening data integration.   AUTHOR(S): Stephen Clyde - Utah State University      Credentials: PhD in Computer Science       BIO: Dr. Stephen Clyde is an associate professor at Utah State University in the Computer Science Department, specializing in software engineering; distributed systems; and integrated health-care information systems. Since joining USU in 1993, Stephen has been the principle investigator on dozens of research and development projects, including the National Scenic Byways websites (www.byways.org, www.bywaysonline.org), Utah's Child Advanced Record Management (CHARM) project, and a system that support automated data exchange between Earlier Intervention Part-C and Part-B. Prior to joining USU, Stephen worked in the software-development industry for 18 years in a variety of positions, including as Chief Scientist, Senior Systems Analyst, Software Architect. He helped start and manage several successful software-development businesses. Dr. Clyde earned both his B.S. and Ph.D. in Computer Science, with a specialization in Software Engineering, from Brigham Young University in Provo, Utah. He and his family live in the North Logan and enjoy traveling, camping, and cycling.