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ABSTRACT INFORMATION
Title: 'Parent’s Perspectives on the Physician's Role in Parent Support When a Child is Diagnosed with Hearing Loss' Track: 8-Program Evaluation and Quality Assurance Audience: Primary Audience: Hospital/Birthing Center< Secondary Audience: Medical Provider Tertiary Audeince: Family of a child with hearing loss Keyword(s): parent perspectives, physician involvement, infant hearing loss, EI Learning Objectives: 1. Identify challenges parents experience in receiving proper support from physicians regarding infant hearing loss. 2. Describe the information parents should and need to receive at the time of diagnosis. 3. Identify parent preferences in receiving information about hearing loss from physicians. 4. Describe how parents can communicate needs to primary physicians about receiving information regarding hearing loss and available early intervention services. Abstract: When a baby fails his or her newborn hearing screening and a permanent hearing loss is identified, parents need to make critical decisions regarding their child’s future. Prompt entry into early intervention services is essential for successful communication skills. However, it is also at this exact moment when parents generally feel a sense of grief and are overwhelmed, and turn to their baby's physician for guidance. Thus, Pediatricians, Family Practitioners, and Midwives have vital roles in supporting and guiding parents in accessing appropriate services. Unfortunately, many parents do not receive the proper support that is necessary to guide them and their baby on the path of intervention and services. In order to better understand the challenges parents face when involved in the diagnostic process, a survey was developed and distributed to parents of children with hearing loss. The insights and personal experiences obtained from the survey were used in a physician outreach project in an effort to help physicians better understand parent needs when a child is diagnosed with hearing loss. The results of this survey will be presented, and the audience will be invited to share their thoughts and suggestions on issues related to parent/physician interaction and the dissemination of information during identification and diagnostic testing. Presentation(s): Not Available Handouts: Not Available
SPEAKER INFORMATION
PRESENTER(S): Maria Roetto - Utah State University Audiology      Credentials: B.S. Au.D. Candidate 2011      Other Affiliations: URLEND, FLISPA       Maria Roetto is a third year graduate student in the Doctorate program of Audiology at Utah State University in Logan, Utah. Her emphasis is in infant-pediatric audiology and cochlear implants. Maria speaks Spanish fluently and enjoys being an advocate for the Hispanic population at the local and international level. In addition to her academic pursuits, Maria is actively involved in URLEND (Utah Regional Leadership Education in Neurodevelopmental Disabilities) and FLISPA (Future Leaders in Speech Pathology and Audiology). Elizabeth Hankins - Utah State University Audiology      Credentials: B.S. Au.D. Candidate 2012      Other Affiliations: URLEND Auditory Learning and Spoken Language Program, Utah State University       Elizabeth Hankins is a second year graduate student in the Doctorate program of Audiology at Utah State University in Logan, Utah. Her emphasis is in infant-pediatric audiology. She is also receiving a specialization in the Auditory Learning and Spoken Language Program. In addition to her academic pursuits, Elizabeth also is actively involved in URLEND (Utah Regional Leadership Education in Neurodevelopmental Disabilities).   AUTHOR(S): Karen Munoz - Utah State University      Credentials: Associate Professor      Other Affiliations: NCHAM       BIO: Karen Muñoz is an associate professor of audiology at Utah State University in the Department of Communicative Disorders and associate director of the National Center for Hearing Assessment and Management. Her research focus is in the area of childhood hearing loss. Maria Roetto - Utah State University Audiology      Credentials: B.S. Au.D. Candidate 2011      Other Affiliations: URLEND, FLISPA       BIO: Maria Roetto is a third year graduate student in the Doctorate program of Audiology at Utah State University in Logan, Utah. Her emphasis is in infant-pediatric audiology and cochlear implants. Maria speaks Spanish fluently and enjoys being an advocate for the Hispanic population at the local and international level. In addition to her academic pursuits, Maria is actively involved in URLEND (Utah Regional Leadership Education in Neurodevelopmental Disabilities) and FLISPA (Future Leaders in Speech Pathology and Audiology). Elizabeth Hankins - Utah State University Audiology      Credentials: B.S. Au.D. Candidate 2012      Other Affiliations: URLEND Auditory Learning and Spoken Language Program, Utah State University       BIO: Elizabeth Hankins is a second year graduate student in the Doctorate program of Audiology at Utah State University in Logan, Utah. Her emphasis is in infant-pediatric audiology. She is also receiving a specialization in the Auditory Learning and Spoken Language Program. In addition to her academic pursuits, Elizabeth also is actively involved in URLEND (Utah Regional Leadership Education in Neurodevelopmental Disabilities).