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ABSTRACT INFORMATION
Title: 'Promoting the Genetic Referral ' Track: 2-Audiological Assessment and Intervention Audience: Primary Audience: Audiologist Secondary Audience: Early Intervention Provider Tertiary Audeince: Medical Provider Keyword(s): Region 4 Genetics Collaborative, inheritable disorders, toolkit Learning Objectives: Learn about the Region 4 Genetics Collaborative EHDI Workgroup Identify 3 actions the audiologist can implement to facilitate the genetic referral Describe 3 tools that can assist providers in making the genetic referral after confirmation of hearing loss Abstract: The Region 4 Genetics Collaborative EHDI workgroup consists of key EHDI representatives from 7 states. One of the Workgroup goals is to identify and categorize follow-up issues related to the genetic referral for babies with diagnosed hearing loss. The other primary goal is to develop materials/products to assist with providing effective genetic follow-up for these babies and their families. The Workgroup is developing a “toolkit” for professions and families. There will be a brief description of the toolkit. This presentation will address one element of the toolkit, a PowerPoint presentation for use with providers that covers issues involved with making the genetic referral for EHDI babies with confirmed hearing loss. Presentation(s): Not Available Handouts: Not Available
SPEAKER INFORMATION
PRESENTER(S): Sally Hiner - Region 4 Genetics Collaborative      Credentials: BS, LBSW      Other Affiliations: Institute for Educational Leadership Education Policy Fellow Community Research Institutional Review Board Member       Mrs. Hiner provides expertise in adapting and utilizing technology to facilitate the collaborative process in all aspects of coalition building. Mrs. Hiner has experience and expertise in disease registry development, the medical home model, collaborative group processes, strategic plan implementation and policy assessment and recommendation. Mrs. Hiner also serves as the MPHI Director of Research Integrity. In this role, she is responsible for the day-to-day operations of MPHI’s Office of Research Integrity which provides oversight and guidance to ensure institution-wide compliance with policy and procedure concerning project documentation and privacy and confidentiality, in addition to human subjects’ research protection. Molly Pope - Indiana State Dept of Health & Region 4 Genetics Collaborative      Credentials: Audiologist, MAT, CCC-A, FAAA      Other Affiliations: Region 4 Genetics Collaborative       Molly Pope is a clinical audiologist with over 30 years of pediatric experience at Riley Hospital for Children, Indiana University Medical Center, and Indianapolis, IN. She has been a Regional Consultant with the Indiana State Department of Health Early Hearing Detection and Intervention program for 8 years. As the Lead Regional Consultant, Molly provides technical assistance and consultation to hospitals and families in her region, oversees the activities of the other Regional Consultants and assists with program development and follow-up at ISDH. Molly has co-authored numerous professional articles, presented at conventions, taught residents at the IU School of Medicine and is a Clinical Instructor for Purdue University’s AuD Program.   AUTHOR(S): Molly Pope - Indiana State Dept of Health & Region 4 Genetics Collaborative      Credentials: Audiologist, MAT, CCC-A, FAAA      Other Affiliations: Region 4 Genetics Collaborative       BIO: Molly Pope is a clinical audiologist with over 30 years of pediatric experience at Riley Hospital for Children, Indiana University Medical Center, and Indianapolis, IN. She has been a Regional Consultant with the Indiana State Department of Health Early Hearing Detection and Intervention program for 8 years. As the Lead Regional Consultant, Molly provides technical assistance and consultation to hospitals and families in her region, oversees the activities of the other Regional Consultants and assists with program development and follow-up at ISDH. Molly has co-authored numerous professional articles, presented at conventions, taught residents at the IU School of Medicine and is a Clinical Instructor for Purdue University’s AuD Program.