18th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 3-5, 2019 • Chicago, IL

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  |  Social Support Service Preferences of Parents and Caregivers of Children who are D/deaf or Hard of Hearing

Social Support Service Preferences of Parents and Caregivers of Children who are D/deaf or Hard of Hearing

This two-phase study explores the connection between different educational approaches/philosophies with children who are D/deaf or hard of hearing and the preferences of their parents and caregivers for support services. Phase 1 is a semistructed needs assessment, combined with a review of the literature to inform a survey distributed to parents and caregivers. The survey focuses on preferences for the logistics, content and composition of support services. In Phase 2, the survey is distributed to parents and caregivers from three distinct educational approaches/philosophies (1. Oral/Aural, 2. Signed language, 3. Other communication approach). The results of each cohort of parents and caregivers are presented and differences in preferences will be discussed. The goal is to identify any trends, globally or educational approach/philosophy specific, as it relates to support service delivery.

  • After completing this activity, participants will be able to list the different elements of support groups for parents and caregivers of children who are D/deaf and hard of hearing.
  • After completing this activity, participants will be able to describe the methods used in creating and distributing this survey to parents and caregivers from diverse communication approaches.
  • After completing this activity, participants will be able to explain recent findings on the impact of educational philosophy for support group preferences for parents and caregivers of children who are D/deaf and hard of hearing

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Presenters/Authors

Torri Ann Woodruff (), University of Connecticut, torri.a.woodruff@gmail.com;
Current Ph.D. student at the University of Connecticut following clinical experiences at Gallaudet University. Areas of interest and experience include cochlear implant rehabilitation services, and support services for the pediatric population.

ASHA DISCLOSURE:

Financial - Receives Grants for Other activities from ASHA.  

Nonfinancial - No relevant nonfinancial relationship exist.


Claire Bernstein (), Gallaudet University, Claire.bernstein@gallaudet.edu;
Dr. Bernstein received her Ph.D. in Audiology from Columbia University. Her clinical, teaching, and research work over the years has focused on rehabilitative audiology with adult cochlear implant users and older adults with hearing loss. Dr. Bernstein is currently a Principal Investigator (PI) with the Rehabilitation Engineering Research Center for Deaf/Hard of Hearing at Gallaudet University. In collaboration with Co-PI Professor Diane Brewer from George Washington University, Dr. Bernstein is directing a multi-site randomized clinical trial (RCT) looking at the role of short-term aural rehabilitation intervention to maximize outcomes for adult cochlear implant users, and directing another RCT evaluating the effectiveness of delivering a rehabilitation protocol for adult cochlear implant users via a telerehab platform. Dr. Bernstein currently serves as consultant on a SBIR grant from the National Institute on Aging for developing interactive informational support for the first-time older hearing aid users.

ASHA DISCLOSURE:

Financial - No relevant financial relationship exist.

Nonfinancial - No relevant nonfinancial relationship exist.


Kathleen Cienkowski (), University of Connecticut, cienkowski@uconn.edu;
Kathleen M Cienkowski, Ph.D. CCC/A is an Associate Professor and Program Director of Audiology at the University of Connecticut. Dr. Cienkowski studies the benefits of AR among patients with acquired hearing loss and their families. Her work has been funded by National Institutes of Health and the Veterans Administration. She is the Past-President of the Academy of Rehabilitative Audiology, Past-Coordinator for the American Speech, Language and Hearing Association (ASHA) Special Interest Group 7: Aural Rehabilitation and Its Instrumentation. She currently serves a audiology discipline coordinator for the UCONN LEND and co-investigator for the UCONN Pediatric LEND Supplement grant.

ASHA DISCLOSURE:

Financial - Receives Grants for Independent contractor from Maternal Bureau of Maternal and Child Health Bureau.   Receives Grants for Independent contractor from Maternal Bureau of Maternal and Child Health Bureau.  

Nonfinancial - No relevant nonfinancial relationship exist.