2024 Early Hearing Detection & Intervention Conference
March 17-19, 2024 • Denver, CO
| Social Support Service Preferences of Parents and Caregivers of Children who are D/deaf or Hard of Hearing
Social Support Service Preferences of Parents and Caregivers of Children who are D/deaf or Hard of Hearing
This two-phase study explores the connection between different educational approaches/philosophies with children who are D/deaf or hard of hearing and the preferences of their parents and caregivers for support services. Phase 1 is a semistructed needs assessment, combined with a review of the literature to inform a survey distributed to parents and caregivers. The survey focuses on preferences for the logistics, content and composition of support services.
In Phase 2, the survey is distributed to parents and caregivers from three distinct educational approaches/philosophies (1. Oral/Aural, 2. Signed language, 3. Other communication approach). The results of each cohort of parents and caregivers are presented and differences in preferences will be discussed. The goal is to identify any trends, globally or educational approach/philosophy specific, as it relates to support service delivery.
- After completing this activity, participants will be able to list the different elements of support groups for parents and caregivers of children who are D/deaf and hard of hearing.
- After completing this activity, participants will be able to describe the methods used in creating and distributing this survey to parents and caregivers from diverse communication approaches.
- After completing this activity, participants will be able to explain recent findings on the impact of educational philosophy for support group preferences for parents and caregivers of children who are D/deaf and hard of hearing
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Presenters/Authors
Torri Ann Woodruff-Gautherin
(Primary Presenter), University of Connecticut, torri.woodruff@uconn.edu;
Torri Ann Woodruff-Gautherin, PhD is a Research Scientist in the HELLO Lab of Dr. Derek Houston at UCONN. Passionate about bolstering the voices of stakeholders, Torri Ann implements qualitative methods to highlight the power and value of individual voices in making change. Torri Ann is interested in the intersection of public health, early intervention, and family support.
ASHA DISCLOSURE:
Financial -
• Receives Grants for Other activities from Educational Audiology Association .
• Receives Salary for Employment from UConn.
Nonfinancial -
• Has a Professional (Co Chair)
relationship for Volunteer membership on advisory committee or review panels.
• Has a Professional (Board memeber)
relationship for Volunteer membership on advisory committee or review panels.
AAA DISCLOSURE:
Financial -
Financial relationship with Follow up research on this topic is funded by the Educational Audiology Association
Torri Ann Woodruff-Gautherin is employed by the University of Connecticut as a Research Scientist in the HELLO Lab.
Nature: Torri Ann Woodruff-Gautherin serves on the CT EHDI Taskforce and CT Hands and Voices Board.
Nonfinancial -
No relevant nonfinancial relationship exists.
Claire Bernstein
(Author), Gallaudet University, Claire.bernstein@gallaudet.edu;
Dr. Bernstein received her Ph.D. in Audiology from Columbia University. Her clinical, teaching, and research work over the years has focused on rehabilitative audiology with adult cochlear implant users and older adults with hearing loss. Dr. Bernstein is currently a Principal Investigator (PI) with the Rehabilitation Engineering Research Center for Deaf/Hard of Hearing at Gallaudet University. In collaboration with Co-PI Professor Diane Brewer from George Washington University, Dr. Bernstein is directing a multi-site randomized clinical trial (RCT) looking at the role of short-term aural rehabilitation intervention to maximize outcomes for adult cochlear implant users, and directing another RCT evaluating the effectiveness of delivering a rehabilitation protocol for adult cochlear implant users via a telerehab platform. Dr. Bernstein currently serves as consultant on a SBIR grant from the National Institute on Aging for developing interactive informational support for the first-time older hearing aid users.
ASHA DISCLOSURE:
Financial -
Nonfinancial -
AAA DISCLOSURE:
Financial -
Nonfinancial -
Kathleen Cienkowski
(Author), University of Connecticut, cienkowski@uconn.edu;
Kathleen M Cienkowski, Ph.D. CCC/A is an Associate Professor and Department Head of SLHS at the University of Connecticut. Dr. Cienkowski studies the benefits of AR among patients with acquired hearing loss and their families. Her work has been funded by National Institutes of Health and the Veterans Administration. She is the Past-President of the Academy of Rehabilitative Audiology, Past-Coordinator for the American Speech, Language and Hearing Association (ASHA) Special Interest Group 7: Aural Rehabilitation and Its Instrumentation. She currently serves a audiology discipline coordinator for the UCONN LEND and co-investigator for the UCONN Pediatric LEND Supplement grant.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
• Has a Professional
relationship for Board membership.
• Has a Professional
relationship for Board membership.
AAA DISCLOSURE:
Financial -
Financial relationship with University of Connecticut, Hearing Rehabilitation Foundation, Eastern CT HLAA Chapter .
Nature: Faculty member
Board member
Boards member.
Nonfinancial -
No relevant nonfinancial relationship exists.