2024 Early Hearing Detection & Intervention Conference
March 17-19, 2024 • Denver, CO
| What Can Newborn Hearing Screening Data Tell Us About Factors Associated with Loss to Follow-Up?
What Can Newborn Hearing Screening Data Tell Us About Factors Associated with Loss to Follow-Up?
Today, newborn hearing screening (NBHS) is widely accepted and its importance and benefits have been recognized worldwide. Although the percentage of infants being screened in the United States (U.S.) has increased dramatically from 38% in 2000 to 95% in 2007 following the Joint Committee on Infant Hearing (JCIH) recommendations, approximately 50% of those who do not pass are not documented as having returned for appropriate follow-up to (a) confirm the hearing loss, (b) be fit with hearing technology, or (c) receive additional intervention. These infants are referred to as “lost to follow-up”. In general, children with congenital hearing loss who receive early intervention have better outcomes than those who are diagnosed later in life. Therefore, it is essential that infants who do not pass their newborn hearing screening receive follow-up diagnostic testing and appropriate services in a timely manner.
The Department of Hearing and Speech Sciences (DHSS), Division of Audiology performs screenings in the neonatal intensive care unit (NICU) and well baby nursery (WBN) on approximately 4,500 babies a year. The primary goal of this project was to develop a data repository that would allow for the compilation of infant characteristics and screening data in Vanderbilt’s newborn nurseries and use the data collected for quality monitoring and investigation of possible factors associated with loss to follow up in addition to several other goals such as:
1. development of a REDCap data repository, to include data on patient demographics, screening results, and risk factors for hearing loss;
2. documentation and description of potential factors that might be associated with lost to follow-up, including infant and family demographics; and
3. calculation of the percentage of children receiving intervention less than one month after diagnosis, as recommended by the JCIH and an estimate of the institutional loss to follow-up rate.
- Creation of a data repository and data management
- Using data to identify potential factors for loss to follow-up
- How our data can help us improve referral and follow-up rates
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Presenters/Authors
Anne Marie Tharpe
(Author), Vanderbilt University, anne.m.tharpe@vanderbilt.edu;
Dr. Tharpe is Professor and Chair, Department of Hearing and Speech Sciences, Vanderbilt University School of Medicine in Nashville Tennessee. The primary research emphasis in her laboratory has been in furthering our understanding of the developmental impact of hearing loss on young children. This work has been done by examining questions of behavioral indices of attention, environmental exploration, and academic outcomes. Her recent work has focused on the impact of hearing technology interventions on caregiver and child behavior and the sleep patterns in those with hearing loss. Dr. Tharpe has published extensively in national and international professional journals, has published numerous books and book chapters, and has presented to over 300 audiences around the world on pediatric audiology issues. She is co-editor with Dr. Richard Seewald of The Comprehensive Handbook of Pediatric Audiology, 2nd edition, which was published in 2016.
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Hayden Engstrom
(Co-Presenter,Author), Vanderbilt University, hayden.g.engstrom@vanderbilt.edu;
Hayden Engstrom recently earned her Au.D. from Vanderbilt University in May 2018. She completed her fourth year externship at Children's Hospital of Wisconsin in affiliation with the Medical College of Wisconsin, with a focus in cochlear implants. Her primary interest is in pediatric audiology, particularly the areas of early intervention and cochlear implants. She spent over two years conducting newborn hearing screenings as a student technician at Vanderbilt University Medical Center and has participated in several newborn hearing screening research projects.
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Alyssa Fosnight
(Co-Presenter,Author), Vanderbilt University, alyssa.m.fosnight@vanderbilt.edu;
Alyssa Fosnight is a fourth year audiology extern at Vanderbilt University Medical Center, specializing in pediatrics. In May 2017, she will graduate with her Doctor of Audiology degree and pursue a career dedicated to improving the lives of children with hearing loss. She is especially interested in diagnostic testing and pediatric hearing aids.Her research interests include appropriate implementation of JCHI's 1-3-6 guidelines in both newborn and neonatal intensive care unit nurseries.
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