2024 Early Hearing Detection & Intervention Conference

March 17-19, 2024 • Denver, CO

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3/18/2024  |   2:25 PM - 2:50 PM   |  Addressing Loss to Follow Up Rates through Parent Education   |  Capitol 4

Addressing Loss to Follow Up Rates through Parent Education

In this presentation, we will 1) Outline why appointment no show rates, cancellation rates, and loss to follow up rates are elevated, 2) Explain how Georgia Mobile Audiology (GMA) addressed this issue in our state and, 3) How participants can integrate a similar approach where they live. As practitioners in the field of hearing loss, we all know the statistics related to diagnostic hearing tests. The Georgia Commission for the Deaf and Hard of Hearing updated the Deaf and Hard of Hearing (DHH) Language and Literacy Dashboard for 2022. The data from the dashboard shows 93% of Georgia’s infants received the Newborn Hearing Screening (NBHS) with only 25% of infants needing full diagnostic hearing testing were tested, and only 25% of families with babies diagnosed as DHH reported enrollment into early intervention services. These staggering facts required action, and GMA Parent Navigators (PNs) were tasked with finding out why families were not attending the necessary follow up appointments after referring on the NBHS. GMA Parent Navigators tackled this dilemma by creating protocols for contacting families, developing a set of checks and balances to ensure families understood on the impact of hearing loss as related to literacy, and providing access to wrap around services as needed by families. The results of GMA’s established parent navigation protocol showed dramatic decreases in the no show rate, cancellation rate, and loss to follow up rate for diagnostic non-sedated ABR appointments. We believe this approach is applicable to other states throughout the county, and the lessons we have learned can benefit those who would like to implement a similar program in their states.

  • 1. The participant will explain the relationship between early diagnosis/intervention and language and literacy outcomes.
  • 2. The participant will identify obstacles families face making and going to medical appointments.
  • 3. The participant will describe strategies to decrease diagnostic ABR appointment No Show rates, appointment Cancellation rates and Loss to Follow Up rates.

Presentation:
3478265_16428StormeyCone.pdf

Handouts:
Handout is not Available

Transcripts:
3478265_16428StormeyCone.docx


Presenters/Authors

Stormey Cone (Primary Presenter), Mobile Audiology Program, Department of Education, scone@doe.k12.ga.us;
Stormey Cone holds both a master’s degree and bachelor’s degree in deaf education from Valdosta State University and a bachelor’s degree in communication and science disorders from the University of Georgia. Stormey is a 20-year veteran teacher of children with hearing loss. After leaving the classroom in 2019, she joined Georgia Mobile Audiology as a parent navigator. Stormey helped establish GMA's infant tele-audiology diagnostic ABR clinics during the Covid pandemic to ensure rural families in South Georgia continued to have access to timely testing and diagnosis. In addition to working as an audiology technician during infant clinics, Stormey helped families navigate the often overwhelming and daunting nuances of the DHH journey. Stormey is now the director of Family and Community Engagement for the State Schools Division of the Georgia Department of Education where she leads a team of parent navigators. Stormey and her team serve as a safety net program for high-risk families with DHH children throughout Georgia.


ASHA DISCLOSURE:

Financial -
• Receives Salary for Employment from Georgia Department of Education.

Nonfinancial -
No relevant nonfinancial relationship exists.

AAA DISCLOSURE:

Financial -
No relevant financial relationship exists.

Nonfinancial -
No relevant nonfinancial relationship exists.

Sherri Nighbert (Co-Presenter), Georgia Mobile Audiology, State Schools Division, sherri.nighbert@doe.k12.ga.us;
Sherri Nighbert obtained her bachelor’s degree in business communication from College of Charleston. She is also the mother of a child who is deaf and a bilateral Cochlear Implant user who is fully mainstreamed in the local elementary school. Sherri’s career path pivoted after 2 years of her child’s diagnosis to pursue a career in the DHH community with an emphasis on improving family access to resources and increasing support for families traveling their own DHH journey. Sherri successfully co-founded a wrap-around service charity, The Jason Cunningham Charitable Foundation (JCCF) (www.cunninghamcharity.org). For the last 8 years, JCCF has helped over 200 families needing financial assistance for hearing technologies, guidance with audiological and ENT services, early intervention therapy, transportation, and accommodations. From 2018 to 2022, Sherri was the grant manager and lead parent navigator for the new initiative she implemented called Access to Language (www.accesstolanguage.org) through the Atlanta Speech School. Currently Sherri is the Lead Parent Navigator for the DHH Family Engagement Program under the State Schools Division of the Georgia Department of Education and President of the Georgia AG Bell chapter. Sherri is extremely motivated by building Georgia’s DHH community to make sure no parent or child ever feels isolated.


ASHA DISCLOSURE:

Financial -
No relevant financial relationship exists.

Nonfinancial -
No relevant nonfinancial relationship exists.

AAA DISCLOSURE:

Financial -
No relevant financial relationship exists.

Nonfinancial -
No relevant nonfinancial relationship exists.