2024 Early Hearing Detection & Intervention Conference
March 17-19, 2024 • Denver, CO
3/18/2024 | 1:55 PM - 2:50 PM | A Critical Time for Language: What Families of Deaf Infants Wish They Had Known | Capitol 3
A Critical Time for Language: What Families of Deaf Infants Wish They Had Known
A Critical Time for Language: What Families of Deaf Infants Wish They Had Known
The presentation covers a research project focused on families's experience with the EHDI system. Upon looking back on their EHDI journey, families shared what they wish they were told when they first learned their child
is deaf. While the studies cannot be generalized to all families with a deaf child, the important finding from this study
is that almost all families with deaf children started out either with very little or no information about early language opportunities.
The research includes a survey inquiring families' experience from the time they made the initial contact with the medical provider to present time. In addition to the survey, the research include interviews with parents of young deaf children age six and younger with different hearing levels. The findings are organize around three areas of of focus:
1) Identified who provided initial information to the families and their level of satisfaction with the information and resources
they received.
2) Families' level of satisfaction specific to their decision making regarding their child's language acquisition and communication.
3) The research summarizes families' reflection on the following:
a) resources that they wished they were provided earlier;
b) how knowing more about language resources earlier would have impacted their child's language development and education, and
c) what the family's journey could have been.
- Learn about the factors that influenced families' EHDI experience.
- Consider how professionals can develop supportive approaches during early identification.
- Incorporate strategies to enhance language development.
Presentation:
3478265_16388JulieRems-Smario.pdf
Handouts:
Handout is not Available
Transcripts:
3478265_16388JulieRems-Smario.rtf
Presenters/Authors
Laura T. Petersen
(Co-Presenter), California Department of Education, ltpetersen@csdf-cde.ca.gov;
Laura T Petersen MA Ed, currently provides support to families in California with young Deaf/HH children in her position as Early Intervention Consultant with the California Department of Education. She has worked with families with Deaf and Hard of Hearing children as a parent infant specialist, a behavior specialist, a home visit teacher and an Early Intervention Educational Consultant in both medical and educational environments. She supports families by helping them navigate the medical and educational interventions using research-based information regarding language acquisition and social-emotional development as they apply to the academic readiness of their children.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
Marlon Kuntze
(Co-Presenter), California School for the Deaf CORE, MKuntze@csdf-cde.ca.gov;
As the Student Outcomes Data Specialist at the California School for the Deaf, is invested in deaf children's comprehension skills and developing language skills through reading and writing. Dr. Kuntz strives to understand how literate mode of thought manifests in different modalities and how skills in one modality may be related to skills in another modality.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
Julie Rems-Smario
(Primary Presenter), California Department of Education, jsmario@csdf-cde.ca.gov;
Dr. Julie Rems-Smario, Ed.D works as an Early Language and Education Consultant in California at CORE, California School for the Deaf, a program of State Special Schools and Services at the Department of Education. Julie's work includes working as a co-director of California's Early Hearing Detection and Intervention, training Early Start professionals on how to develop language milestones goals for IFSP/IEP, supervising SB 210 data, developing resources for families of Deaf children, and providing technical assistance to Early Childhood Education professionals. During her free time, she volunteers as one of the Public Relations Director of a national campaign, Language Equality, and Acquisition for Deaf Kids (LEAD-K).
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
Financial relationship with .
Nature: .
Nonfinancial -
Non-Financial relationship with .
Nature: .