2024 Early Hearing Detection & Intervention Conference
March 17-19, 2024 • Denver, CO
3/18/2024 | 10:05 AM - 10:30 AM | EHDI Collaborations To Support Quality Improvement, Accessibility and Equity | Mineral Hall B/C
EHDI Collaborations To Support Quality Improvement, Accessibility and Equity
This presentation will inspire EHDI (Early Hearing Detection and Intervention)/ Family Based Organization (FBO) Stakeholders to foster collaboration between programs across jurisdictions, leverage continuous quality improvement (CQI) methodologies, address diversity and inclusion and prioritize equitable access for all. In the context of EHDI, a collaborative approach transcends boundaries and bolsters the effectiveness of programs. We will explore strategies to enhance cooperation, share best practices, and drive innovation through collaborative partnerships even on limited resources.
CQI data driven methodologies play a pivotal role in optimizing EHDI programs and their systems. By adopting data-driven approaches, EHDI Coordinators and FBOs can identify areas for improvement, streamline processes, and ultimately enhance outcomes for children with hearing loss and their families. The presenters will delve into practical examples illustrating the transformative power of collaboration and CQI within the EHDI system of care.
Moreover, accessibility is paramount to serve diverse communities and disparate populations. Ensuring materials are 508 compliant and employ appropriate access and comprehension is not just a legal requirement but also a means to break down barriers for all. These presenters will underscore the significance of accessibility and on how small incremental changes can foster inclusivity.
In summary, EHDI and FBO Stakeholders have a unique opportunity to lead transformative change by fostering collaboration, embracing quality improvement methodologies, and prioritizing accessibility. Participants will be equipped with knowledge and tools to begin to create effective, equitable, and inclusive programs.
- Participants will be able to identify two reasons for collaboration across programs and jurisdictions.
- Participants will be able to summarize how to use Continuous Quality Improvement methodology to support user friendly spaces.
- Participants will have insight to address messaging that is mindful of language use, 508 compliance and state or program guidelines.
Presentation:
3478265_16345CarrieBalian.pdf
Handouts:
3478265_16345CarrieBalian.pdf
Transcripts:
3478265_16345CarrieBalian.pdf
Presenters/Authors
Carrie Balian
(Primary Presenter,Author), Illinois Hands & Voices Guide By Your Side, cbalian6@outlook.com;
Carrie Balian is the mother of five children. Her oldest child, Jack, was born deaf. Carrie and her husband, Andre, have been married for over 25 years and reside in Island Lake, IL. She has been the Coordinator of her state Parent to Parent support program, IL Hands & Voices Guide By Your Side (GBYS) for over 13 years. In continuing her ventures of representing families of children that are deaf and hard of hearing, Carrie has presented to groups nationwide and co-authored several publications including the NCHAM e-book. Carrie is currently serving as a board member on the Illinois Universal Newborn Screening Advisory Council and Illinois Hands & Voices. She is also an editor for JEHDI (Journal of Early Hearing Detection & Intervention) publications, participated on the Illinois Universal Newborn Hearing & Screening Advisory Board and Illinois Deaf Task Force. She has also participated as a parent professional on the NICHQ (National Institute for Children’s Healthcare Quality) national and statewide learning collaborative teams. In 2021, Carrie graduated from the Hands & Voices L2L (Leadership to Leadership) development cohort and in 2022 was awarded the EHDI Family Leadership Award. Carrie had the pleasure of participating in two national projects: FEHDI (Family EHDI) to help determine data points and definitions for family-based organizations for grant reporting purposes and VSV/Virtual Site Visit team that created materials and information to help support families before and after newborn hearing screening and the hospital teams that carry out newborn hearing screening. Carrie has also been recognized and awarded both nationally and locally for her support, commitment, and leadership in the field. Her educational background includes a bachelor’s degree in Marketing and Management.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
Ginger Mullin
(Co-Presenter,Author), Illinois Department of Public Health, ginger.mullin@illinois.gov;
Dr. Ginger Mullin has a Bachelor’s degree Communication Disorders. She also holds a Master’s and Doctoral degree in Audiology. She has worked in pediatric audiology and the EHDI system since 1995 and became Illinois’ EHDI coordinator in 2005. During that time she has been the principal investigator for both the Health Resources and Services Administration (HRSA) and Centers for Disease Control and Prevention (CDC) grants/ cooperative agreements. She has received specific training in pediatrics, public health, data management and Continuous Quality Improvement (CQI). As the EHDI Coordinator, Dr. Mullin has worked at the state and national level to promote newborn hearing screening, audiology diagnostics, targeted intervention, family-to-family support, stakeholder education and ongoing surveillance through age 3. She has presented regionally and nationally on pediatric assessment, amplification, the EHDI system of care, and partnering with families She has been part of the leadership teams for the Newborn Hearing Screening Training Curriculum (NHSTC), EHDI-PALS, Virtual Site Visit Project (VSV), as well as the national EHDI Meeting. She has severed in many capacities, including the President for the Directors of Speech and Hearing Programs in State Health and Welfare Agencies. She is the co-leader of EHDI Chats a national forum for EHDI Coordinators to meet monthly and share seamlessly while stealing shamelessly from one another to enhance state programs. She has been nominated several time for the Antonio Maxon Award at the National EHDI Meeting and received the Seaver Vision Award. Dr. Mullin was also a key leader for the EHDI and GBYS program which received the Generating Real Action by Cultivating Engagement (GRACE) Award from Expecting Health and Baby’s First Test. Dr. Mullin sits on the Illinois Universal Newborn Screening Advisory Committee and the Illinois Interagency Council on Early Intervention to guide work for children with low-incidence sensory disabilities.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
Financial relationship with Illinois Early Hearing Detection and Intervention Program .
Nature: The EHDI program is funded by HRSA and CDC.
Nonfinancial -
No relevant nonfinancial relationship exists.