2024 Early Hearing Detection & Intervention Conference
March 17-19, 2024 • Denver, CO
| Stop CMVArizona – Collaborating to Improve Children’s Health in Arizona
Stop CMVArizona – Collaborating to Improve Children’s Health in Arizona
The absence of newborn screening protocols for congenital cytomegalovirus (cCMV) coupled with a lack of cCMV awareness among vulnerable populations and the providers who serve them is arguably the root cause of the continued and substantial impact of cCMV on Arizonan communities, and represents a structural gap affecting the health of Arizona’s women and children. The benefits are clear and the timing is right for establishing newborn cCMV screening and a parent/provider network for cCMV education, training, and support in Arizona. In this presentation, we will discuss our ongoing journey to the formation of STOP CMV AZ, a partnership for cCMV advocacy that includes established key public health, parent and provider collaborators associated through Arizona Early Hearing Detection and Intervention (AzEHDI). In this presentation, we will discuss (1) the outcomes of educational interventions targeting women of childbearing age, healthcare providers, early interventionists, and teachers about cCMV, (2) the journey towards a trial of cCMV screening at Phoenix area hospitals as a collaboration between healthcare providers, AzEHDI, and parent advocates. This presentation is a result of studies was approved by the Midwestern University IRB (AZ #1277, IRB approval 7/10/2019), and funded by the National CMV Foundation (to MS and KMM), and HRSA EHDI (to LO), and The EAR Foundation of Arizona MS).
- Describe formation of state-level CMV advocacy
- Describe culturally competent strategies for CMV education
- Describe collaboration to develop best practice strategies for CMV screening
Presentation:
23278_13632MelissaSelbst.pdf
Handouts:
Handout is not Available
Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference
Presenters/Authors
Melissa Selbst
(POC,Primary Presenter,Author), The EAR Foundation of Arizona, melissa@earfoundationaz.com;
Executive Director, 2006-present
EAR Foundation of Arizona
Staff and volunteer management, Fundraising, Community Relations, Board Management and Development
Financial Management, Program Management Professional Education and Training
Director of Program Services and Public Affairs, 1996 – 2006
March of Dimes Arizona Chapter, Phoenix, Arizona
Program management and oversight for public health education, professional health education,
advocacy and grants management for the Arizona Chapter.
Consultant, Creative Management Learning Solutions, L.L.C., 1996-current
Developed a Managed Care Course Curriculum and course instruction on various health topics. Participated in the development, implementation and evaluation of a HRSA grant. Conducted patient chart audits. Developed patient education materials for patient newsletters both Medicaid and Medicare populations. Develop and market health education tools and trainings.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
Financial relationship with The EAR Foundation of Arizona.
Nature: employed as the Executive Director and Co-founder of Stop CMV AZ.
Nonfinancial -
No relevant nonfinancial relationship exists.
Lylis Olsen
(Co-Author), The EAR Foundation of Arizona, lylisolsen@msn.com;
Lylis Olsen is the State EHDI Coordinator in Arizona. She is a pediatric audiologist with 35years of experience. She also has a Master's degree in Public Health and has 28 years experience in state newborn hearing screening programs. She works with the EAR Foundation of Arizona on education, advocacy and promoting services for families and their children who are Deaf or Hard of Hearing. Lylis also manages the HEAR for Kids, a unique program that serves as a safety net for children in need of loaner cochlear implants or hearing aids, permanent hearing aids or access to all levels of diagnostic audiology services.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
Financial relationship with The EAR Foundation of Arizona.
Nature: none.
Nonfinancial -
Non-Financial relationship with The EAR Foundation of Arizona.
Nature: none.
Kathleen Muldoon
(Co-Presenter,Author), Midwestern University, kmuldo@midwestern.edu;
Dr. Muldoon received her PhD in anthropology from Washington University in St. Louis, and is Associate Professor of Anatomy at Midwestern University, Glendale, AZ, where she teaches anatomy and embryology to medical and allied health students. Dr. Muldoon is an education scholar, with interest in the effectiveness of teaching innovations on retention of material and public health knowledge. Her research interests include evaluating methods for prevention of congenital cytomegalovirus (CMV) infection through professional education, and promotion of CMV awareness and behavioral interventions in the community. Dr. Muldoon's research has been funded by the National Science Foundation, the National Geographic Society, American Philosophical Society, and Sigma Xi, among others. She has given research seminars and community outreach workshops nationally and internationally, and her work has been featured on National Public Radio. Dr. Muldoon is the proud mother of three children: her eight-year-old son has multiple disabilities due to congenital cytomegalovirus.
ASHA DISCLOSURE:
Financial -
Nonfinancial -
AAA DISCLOSURE:
Financial -
Nonfinancial -