2024 Early Hearing Detection & Intervention Conference
March 17-19, 2024 • Denver, CO
| Use of Web-based Reports by Primary Care Providers to Improve EHDI Follow-up
Use of Web-based Reports by Primary Care Providers to Improve EHDI Follow-up
Access to Rhode Island Early Hearing Detection and Intervention (EHDI) data is available to primary care providers through KIDSNET, Rhode Island’s web-based integrated child health information system. Users can access screening and diagnostic results for individual infants, as well as run reports identifying those among their own patients who need follow-up. The purpose of this study was to compare EHDI follow-up completion among patients (DOB 7/1/16 - 12/31/19) in primary care practices that ran the KIDSNET EHDI follow-up report to those in practices that never ran a KIDSNET EHDI report during 2017-2019. Separate analyses were completed for infants referred directly for auditory brainstem response (ABR) diagnostic testing after newborn hearing screening and for infants who passed the newborn hearing screen but had risk factors for late onset hearing loss and were referred for Visual Response Audiometry (VRA) after six months. Seventy-six of 90 practices (84%) with infants referred for ABR ran the EHDI follow-up Report and 92 of 113 (81%) with patients needing VRA ran the report. Practices that ran an EHDI follow-up report had significantly higher percentages of patients receiving follow-up for both ABR( 95%vs 87%) and VRA( 22% vs 15%) compared to those not running a report respectively. These findings indicate Web-based reports may be a useful tool to improve EHDI follow-up.
- Participants will be able to describe Rhode Island’s web-based EHDI follow-up report.
- Participants will understand the comparison of follow-up percentages for primary care practices that ran a web-based EHDI follow-up report to practices that did not.
- Participants will learn how reports in an integrated child health information system may enhance participation by PCPs in EHDI follow-up.
Presentation:
23278_13584EllenAmore.pdf
Handouts:
Handout is not Available
Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference
Presenters/Authors
Ellen Amore
(POC,Primary Presenter,Co-Author), RI Dept. of Health, ellen.amore@health.ri.gov;
Ellen Amore is currently Deputy Director of the Center for Health Data and Analysis and Manager of KIDSNET, Rhode Island’s integrated child health information system that contains preventive health care information for Rhode Island children. She is PI on the CDC EHDI Cooperative Agreement. Other programs at the Rhode Island Department of Health that she has managed include Newborn Hearing Screening, Newborn Bloodspot Screening, Newborn Developmental Risk Assessment and home visiting. Her education includes a BA in Human Biology, with a concentration in child development, from Stanford University, and an MS in Maternal and Child Health from the Harvard School of Public Health.
ASHA DISCLOSURE:
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No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
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No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
William Arias
(Author,Co-Author), Rhode Island Department of Health, william.arias@health.ri.gov;
Will Arias received an MPH from the Yale University School of Public Health. Will provides epidemiology support to the Rhode Island Maternal and Child Health programs, including EHDI.
ASHA DISCLOSURE:
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Mike Berry
(Co-Author), HLN Consulting, LLC, berrym@hln.com;
Mike Berry, of HLN Consulting, LLC, provides IT support to RIEHDI, including overseeing the integration of EHDI data with KIDSNET, RI's integrated child health information system.
ASHA DISCLOSURE:
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AAA DISCLOSURE:
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Sara Franklin
(Co-Author), RHODE ISLAND EHDI PROGRAM, SFranklin@WIHRI.ORG;
Sara Franklin, Au.D, is the Program Coordinator for the Rhode Island Early Hearing Detection and Intervention program. Her duties include developing and managing the clinical components of the hospital and state-wide RI-EHDI program for infants. She interprets hearing screenings conducted throughout the state, provides patient referral sources and coordinates audiology networks. She oversees staff as well as technical staff at screening sites throughout the state of Rhode Island. She coordinates research activities and interfaces with statewide agencies such as Department of Health, Early Intervention, Newborn Screening Task Force, EHDI and Kidsnet. Prior to her position she was a clinical audiologist in the Department of Audiology at Memorial Hospital of Rhode Island supervising the hearing screening staff, diagnosing and managing hearing loss in the pediatric and geriatric populations .
ASHA DISCLOSURE:
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AAA DISCLOSURE:
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Richard Lupino
(Co-Author), DOH, Richard.Lupino@health.ri.gov;
Rich recieved an AS degrees from Community College of RI in Chemistry and an AS from New England Tech in Computer Science. He currently is the data manager for the Rhode Island EHDI data, as well as for other newborn and early childhood datasets.
ASHA DISCLOSURE:
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AAA DISCLOSURE:
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Liza Then
(Co-Author), RI DOH, liza.then@health.ri.gov;
Liza is currently the manager for the Newborn Hearing Screening program and is the EHDI coordinator for Rhode Island. Liza provides oversight for the project and coordinate with other relevant statewide efforts. She previously worked as a parent consultant, and a Community Liaison for RIDOH’s Women, Infant and Children (WIC) Program. Dr. Then is fluent in written and spoken Spanish.
ASHA DISCLOSURE:
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No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
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Financial relationship with RIDOH.
Nature: Non.
Nonfinancial -
Non-Financial relationship with RIDOH.
Nature: Non.
Betty Vohr
(Co-Author), Women & Infants Hospital, bvohr@wihri.org;
Betty Vohr, MD has been the director of Women & Infants Hospital’s Neonatal Follow-up Clinic since 1974 and medical director of the Rhode Island Early Hearing Detection and Intervention program since 1990. She has been the national coordinator of the National Institute of Child Health and Human Development Neonatal Research Network follow-up studies since 1990. Dr. Vohr’s primary clinical and research interests focus on improving the long-term outcomes of high-risk premature infants and infants with hearing loss.
Dr. Vohr played an instrumental role in the development of the RI-EHDI (formerly RIHAP), which was established in 1990. Based at Women & Infants, RIHAP became the first public health program in the United States to achieve universal newborn hearing screening for all infants born in RI. She is a recipient of the Antonia Brancia Maxon award for EHDI Excellence, has served as a member of the Joint Committee on Infant Hearing.
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