2024 Early Hearing Detection & Intervention Conference

March 17-19, 2024 • Denver, CO

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  |  Nationally Representative and State-Level Prevalence Estimates of Parent-Reported Speech or Language Disorder Diagnosis and Co-Morbidities among Children aged 0–17 years, 2016–18

Nationally Representative and State-Level Prevalence Estimates of Parent-Reported Speech or Language Disorder Diagnosis and Co-Morbidities among Children aged 0–17 years, 2016–18

Speech or Language Disorders (SLDs) are common among children who are deaf or hard of hearing. SLDs are characterized by difficulty with speech sounds or fluency, or the acquisition or use of language that impacts communication. SLDs may be present with other mental, behavioral, or developmental disorders (MBDDs) and the combination of these disorders may impact diagnosis and treatment. We pooled data from the 2016–18 National Survey of Children’s Health to estimate the state-level prevalence of parent-reported SLD and co-morbidities among U.S. children. The study included data for 102,008 children aged 0–17 years with a valid response to a parent-reported question about SLD diagnosis. We calculated overall weighted prevalence estimates of parent report of SLD diagnosis, co-morbidities, and demographic characteristics. We also calculated weighted prevalence estimates, weighted population level estimates, and ranges, medians and interquartile ranges (IQRs) for state-level estimates. Prevalence estimates with Clopper-Pearson 95% confidence intervals (CI) and prevalence ratios with Wald 95% CI were calculated for all estimates. Analyses were conducted in SAS-callable SUDAAN v11.0.1 (RTI International; Cary, NC) to account for the complex survey design. In 2016–18, the prevalence of SLD among U.S. children aged 0–17 years was 7.7% (CI: 7.3, 8.1), representing approximately 5,600,000 children. State-level estimates ranged from 4.4%–11.0% (median:7.7; IQR: 6.9, 8.4). The three states with the lowest estimated percentages were below 6.5% (Alabama, Hawaii, and Iowa); the three states with the highest estimated percentages were above 9.5% (Arkansas, Mississippi, and Oregon). Among children who had ever received an SLD diagnosis, 67.8% (95% CI: 65.2, 70.3.2) had any MBDD compared to 18.4% (95% CI: 17.8, 18.9) without SLD. State-level estimates indicate some geographic variation in the prevalence of parent-reported SLD. High prevalence of co-morbid conditions among children with SLD indicate the importance of considering these disorders in SLD research or programs.

  • To estimate the state-level prevalence of parent-reported SLD among children aged 0-17 years in the U.S.
  • To understand how often SLDs are present with other mental, behavioral, or developmental disorders (MBDDs) among children aged 0-17 years in the U.S.

Presentation:
23278_13494SanaCharania.pdf

Handouts:
Handout is not Available

Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference


Presenters/Authors

Sana Charania (POC,Primary Presenter,Author), Centers for Disease Control and Prevention, yje9@cdc.gov;
Sana Charania is an epidemiologist with the EHDI team at the Centers for Disease Control and Prevention. Sana works to support a wide range of analytic and epidemiologic research projects, including analyses using national surveys, community based studies and individual level data. Sana has a B.A. in Anthropology and Global Health from Emory University, and MPH in Global Epidemiology from Emory University’s Rollins School of Public Health.


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Suhana Ema (Co-Presenter,Co-Author), CENTERS FOR DISEASE CONTROL AND PREVENTION, vns0@cdc.gov;
Suhana Ema serves as an epidemiologist with the CDC EHDI Team. She is responsible for analyzing EHDI data and disseminating findings with jurisdictional EHDI programs and partners. She also provides technical assistance to jurisdictional EHDI programs to improve their program and tracking and surveillance work. She holds Master of Public Health degree from the University of Georgia. Suhana was born with severe to profound hearing loss on both ears and wears hearing aids. She is fluent in American Sign Language and lipreads well.


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No relevant financial relationship exists.

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No relevant nonfinancial relationship exists.

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No relevant financial relationship exists.

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No relevant nonfinancial relationship exists.

Rebecca Bitsko (Co-Author), CDC, dvk2@cdc.gov;
Rebecca (Becky) H. Bitsko, PhD is a Health Scientist on the Child Development Studies Team in the Division of Human Development and Disability at the Centers for Disease Control and Prevention (CDC). In her current position, Dr. Bitsko works on epidemiologic studies of Tourette syndrome, attention-deficit/hyperactivity disorder (ADHD), and other mental disorders. Dr. Bitsko received her PhD in Neuroscience from Emory University, where she also completed a postdoctoral fellowship in Psychology. She joined CDC through the Epidemic Intelligence Service (EIS) fellowship in 2005 where she worked on epidemiologic studies of birth defects.


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Melissa Danielson (Author,Co-Author), Centers for Disease Control and Prevention, ekd6@cdc.gov;
Melissa Danielson, MSPH, is a statistician with the Child Development Studies Team in the National Center on Birth Defects and Developmental Disabilities at CDC. Her work includes research on the epidemiology of ADHD and other mental, emotional and behavioral conditions among children using data from national surveys, community-based studies, and administrative health care claims.


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Juliet Haarbauer-Krupa (Co-Author), Centers for Disease Control and Prevention, wuk1@cdc.gov;
Juliet Haarbauer-Krupa, PhD, FACRM is Senior Health Scientist on the Traumatic Brain Injury Team, Division of Injury Prevention, CDC. As a behavioral scientist, her role on the TBI team is to devise research projects and products to better understand trends in TBI in the US and to improve health outcomes for individuals living with a TBI. She is project lead on the Report to Congress on the Management of Traumatic Brain Injury in Children, Changing the Culture of Youth Sports, Clinical Decision Making and Return to School Projects in the division. Dr. Haarbauer-Krupa has over 30 years of experience in the field of Traumatic Brain Injury that encompasses both clinical work in speech-language pathology and research work. She has authored over 100 publications and presentations with specialties in rehabilitation and pediatric populations. She currently holds an adjunct position in the Department of Pediatrics, Emory University School of Medicine.


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