2024 Early Hearing Detection & Intervention Conference
March 17-19, 2024 • Denver, CO
3/05/2019 | 11:35 AM - 12:00 PM | CDC and Texas Epi-Aid Collaboration | Malpensa
CDC and Texas Epi-Aid Collaboration
The state of Texas has the second largest annual birth cohort in the country, with 406,763 births in 2016. In 2016, seven percent of all infants who were deaf or hard of hearing born in the United States (US) were born in Texas. There are likely additional infants with hearing loss who were not identified due to being lost to follow-up or lost to documentation. Texas has a higher than average rate of LFU and LTD compared to the US overall, despite improvement of LFU/LTD rates over the past decade. In 2016, 52.3% of infants not passing their hearing screen were LFU/LTD for diagnostic testing in Texas, compared with 25.4% LFU/LTD nationally. To help address this urgent public health need, the Texas Department of State Health Services (DSHS) requested on-the-ground epidemiologic assistance, or an Epi-Aid, from the Centers for Disease Control and Prevention (CDC) on May 30, 2018. The objectives of this Epi-Aid were to: 1) describe barriers to distinguishing between LFU and LTD; 2) describe barriers to documenting diagnostic and intervention services in the Texas information system; 3) identify potential methods to improve completeness and timeliness of information reported to the Texas Early Hearing Detection and Intervention (TEHDI) program; 4) identify factors associated with LFU/LTD of infants who did not pass the newborn hearing screening; and 5) identify potential next steps to reduce LFU/LTD among infants in need of diagnostics or EI services. CDC and Texas DSHS created a semi-structured interview and conducted qualitative interviews with 56 providers along the hearing continuum of care in three regions of Texas. Providers identified several themes related to LFU/LTD, including provider-related barriers and patient-related barriers. This presentation will highlight detailed findings of this Epi-Aid, offer recommendations to address LFU/LTD, and discuss how states might implement a similar process.
- Explain CDC Epi-Aid Process
- Highlight Epi-Aid findings in Texas and discuss recommendations to address loss to follow-up and loss to documentation
- Discuss how other jurisdictions might implement a similar process
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Presenters/Authors
Ashley Satterfield-Nash
(Primary Presenter), CDC, asatterfield@cdc.gov;
Dr. Ashley Nash, DrPH is a research associate on the Early Hearing Detection and Intervention Team in the Division of Human Development and Disability at the Centers for Disease Control and Prevention (CDC). Her work focus on project management and development activities.
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Robyn Cree
(Author), CDC, nru7@cdc.gov;
Dr. Robyn A. Cree, PhD is an Epidemic Intelligence Service (EIS) Officer assigned to the Child Development Studies Team and Children’s Preparedness Unit in the Division of Human Development and Disability at the Centers for Disease Control and Prevention (CDC). Her work focuses on studying risk and protective factors related to childhood mental, behavioral, and developmental disorders. Dr. Cree received her PhD in Chronic Disease Epidemiology from Yale School of Public Health.
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Eric Cahill
(Co-Presenter), Centers for Disease Control and Prevention, National Center on Birth Defects and Developmental Disabilities, ECahill@cdc.gov;
Eric Cahill, MS has been with the CDC EHDI Team since 2009. As a Health Scientist, Eric provides technical assistance to state EHDI programs and investigates public health related issues for the team. Before coming to CDC, Eric served in the EHDI program for the state of Kentucky. He originally trained as a clinical audiologist and has worked at Temple University Hospital, Temple University Children’s Medical Center and Children’s Hospital Boston.
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Rebecca Bitsko
(Author), CDC, dvk2@cdc.gov;
Rebecca (Becky) H. Bitsko, PhD is a Health Scientist on the Child Development Studies Team in the Division of Human Development and Disability at the Centers for Disease Control and Prevention (CDC). In her current position, Dr. Bitsko works on epidemiologic studies of Tourette syndrome, attention-deficit/hyperactivity disorder (ADHD), and other mental disorders. Dr. Bitsko received her PhD in Neuroscience from Emory University, where she also completed a postdoctoral fellowship in Psychology. She joined CDC through the Epidemic Intelligence Service (EIS) fellowship in 2005 where she worked on epidemiologic studies of birth defects.
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Cheri Grimm
(Co-Presenter), Texas Department of Sate Health Services, cheri.grimme@dshs.texas.gov;
Quality Assurance Specialist
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Eugenia Dunham
(Co-Presenter), Manager Newborn Screening Support, Texas Department of State Health Services, Eugenia.Dunham@dshs.texas.gov;
TBA
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Doug Dittfurth
(Co-Presenter), Department of State Health Services, TEHDI, Doug.Dittfurth@dshs.texas.gov;
TEHDI Coordinator
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