17th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 18-20, 2018 • Denver, CO

EHDI FAMILY LEADERSHIP AWARD

Nominations are invited for the Antonia Brancia Maxon Award for EHDI Excellence to be presented at the 2018 National EHDI Meeting in Denver, Colorado. This award honors the life and work of Dr. Antonia Brancia Maxon to promote effective Early Hearing Detection and Intervention (EHDI) programs for all newborns, infants, and young children. Dr. Maxon was a pioneer in EHDI programs, beginning with her leadership in the Rhode Island Hearing Assessment Project in the late 1980's. She was one of the first to recognize the feasibility and value of universal newborn hearing screening and was a tireless advocate for connecting screening programs with timely and appropriate diagnosis and early intervention.

Her extensive contributions to creating excellent EHDI programs were abruptly ended by a tragic automobile accident in May of 2007. In memory of her contributions, an Award for EHDI Excellence is presented each year at the National EHDI Meeting to honor an individual who has made outstanding contributions to achieving excellence in EHDI programs nationally or in a particular state or region.

Presentation of the 2018 Antonia Brancia Maxon Award for EHDI Excellence will be made on Monday March 19, 2018 at the National EHDI Meeting in Denver, Colorado. More about the National EHDI Meeting, including past nominees and recipients can be found below.

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Yuliana Trujillo

Yuliana Trujillo has provided exemplary leadership in the state of Texas through her outreach and support for EHDI parents who are Spanish-speaking. She is the mother of three, including her thirteen year-old daughter, Yanin, who is deaf.

Yuliana was a well-established advocate and parent guide with the Texas Hands & Voices Guide by Your Side program when she was selected to be a team member on the state's pilot of the Follow Through Guide Project for families who had failed to transition to diagnosis and early intervention. The project is completing its third year and has become a model for other states, and Yuliana's commitment has been a primary factor. In the past three years as a Follow Through Guide Yulina has personally connected with nearly one thousand EHDI families. She explains test results, helps families identify next steps, addresses concerns, and shares her story.

For many of the families who speak primarily Spanish, Yuliana provides information in a clear way for the first time. Her commitment to these families includes follow up phone calls, connecting with providers, and informing the state coordinator of barriers to an often underserved population. Yuliana is fully invested in the families she connects with, and nearly every week comes to our team meeting with another story to share about a family who either needs support or has found their way. She thrives on the opportunity that she must make a difference for other parents, particularly those who do not speak English and who are challenged by limited resources.

Yuliana also has helped coach state leaders on how to more effectively engage these families, from the language that they use, to the resources that they provide, to how to use technology effectively. She has developed relationships with providers in early intervention in order to facilitate connections to families. She is working on guidelines for screeners to ensure that families who are non-English speaking have access to interpreting during the identification process.

Yuliana also moderates a Facebook site for Spanish speaking families in Texas who are deaf and hard of hearing facilitating ongoing family-to-family support and sharing information and resources with the Hispanic community. Yuliana's efforts have made her a leader within Texas, and she also represents the Latino community as a selected member of National Hands & Voices committee on serving Spanish-speaking families. The EHDI system in Texas is better because of Yuliana Trujillo, and she has been a primary agent in changing the trajectory for hundreds of babies who are deaf and hard of hearing and born into wonderful, loving families who happen to speak Spanish.