2024 Early Hearing Detection & Intervention Conference
March 17-19, 2024 • Denver, CO
<< BACK TO INSTRUCTIONAL SESSIONS
3/18/2018 | 1:00 PM - 4:00 PM | Cytomegalovirus Action - CMV Public Health and Policy Advocacy | Capitol 6
Cytomegalovirus Action - CMV Public Health and Policy Advocacy
Momentum is building to increase awareness of congenital cytomegalovirus (CMV) and to establish state screening programs. CMV is the leading known cause of childhood hearing loss, yet very few adults (7%) have heard of it. Hearing loss due to CMV can be prevented and treated, when professionals and parents know about it.
Since the 2017 EHDI meeting, additional states have passed legislation requiring CMV education programs and CMV testing for newborns who fail the newborn hearing screening. Additionally, many more states are raising CMV awareness through educational campaigns without
legislation.
This hands-on planning session is divided into two segments. Segment one: attendees will receive an overview of legislation and educational campaigns. EHDI coordinators responsible for programs as well as CMV professionals will provide relevant examples.
Segment two: attendees will work in small groups and use the large group to develop action plans for creating momentum around CMV awareness, identifying key stakeholders for relationship building and group thinking, and developing effective CMV messaging when promoting education and/or screening.
Participants will be provided with an action planning template and other resources for pursuing, increasing, and/or refining CMV activity in their states. Specific materials from the National CMV Foundation will be provided related to legislative efforts and awareness programs.
Attendees will leave the session with an outline of a campaign including target audience, educational messages, deliverables, and a dissemination plan. This hands-on session is important for anyone (e.g., public health professionals, policy makers, clinicians, researchers and parents) wishing to increase awareness about CMV through legislative or educational campaigns. Participants that are interested in working together are encouraged to attend with others from their state.
- Identify key stakeholders for CMV public health and policy advocacy.
- Develop CMV educational messages for identified target populations.
- Describe available resources for CMV public health and policy advocacy.
Presentation:
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Presenters/Authors
Karen Fowler
(Co-Presenter), University of Alabama at Birmingham (UAB), kfowler@uab.edu;
Karen B. Fowler, DrPH, is a professor in the Department of Pediatrics at the UAB School of Medicine. Her research focuses on the epidemiology, natural history, and pathogenesis of maternal and congenital cytomegalovirus infections and CMV-related hearing loss in children.
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Sara Doutre
(Point of Contact,Primary Presenter), National CMV Foundation, saradoutre@gmail.com;
Sara Doutre is a PHD student studying sociobehavioral epidemiology at Utah State University. She has an MA in education policy studies and a BS in elementary and special education. A former special education teacher, she currently consults with state departments of education and health on special education policy. Her six-year-old daughter is deaf due to congenital cytomegalovirus.
ASHA DISCLOSURE:
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Nonfinancial -
AAA DISCLOSURE:
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