2024 Early Hearing Detection & Intervention Conference
March 17-19, 2024 • Denver, CO
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| The Role of Collaborative Partnerships in in Newborn Screening & Identification: Supporting Deafblind Infants & their Families
The Role of Collaborative Partnerships in in Newborn Screening & Identification: Supporting Deafblind Infants & their Families
Collaboration is the foundation for enhanced services and support for families. This presentation will highlight the benefits of state level partnerships to address critical needs in the areas of early identification of vision and hearing status and cross referral. Common risk factors and etiologies associated with deafblindness and examples of system level collaborations between state deafblind projects, EHDI Programs, family services organizations, and Part C Early Intervention will be shared. Additionally, families will tell their stories that highlight successful collaborations that created positive outcomes, experiences, and engagement. Session participants will have the opportunity to discuss ways to enhance systemic partnerships that increase early identification of infants who are deafblind so families can be supported throughout the screening, referral, and intervention process.
- Participants will increase knowledge of resources to support their work with families who have children with deaf-blindness.
- Participants will increase awareness of the diversity within the deaf-blind population, including issues in serving a low incidence population
- Participants will be able to identify common risk factors and etiologies associated with deaf-blindness and highlight the necessity for statewide systems level collaboration to identify hearing and vision losses and refer for appropriate services as early as possible.
Presentation:
3478265_16191EmmaFricke.pdf
Handouts:
3478265_16191EmmaFricke.pdf
3478265_16191EmmaFricke_1.pdf
Transcripts:
3478265_16191EmmaFricke.doc
Presenters/Authors
Emma Fricke
(Primary Presenter), Helen Keller National Center, enelson@helenkeller.org;
Emma Nelson, MS Ed is the Initiative Lead for Early Identification and Referral at the National Center on Deaf-Blindness (NCDB). She is certified as an early childhood special educator and has taught infants, toddlers, and preschoolers with complex needs including deaf-blindness in classrooms, community, and home-based settings. Before coming to NCDB, she served as Project Director for Vermont’s Federal Deaf-Blind Project. Emma is trained in Cortical Visual Impairment (CVI) and earned her Master's degree at Hunter College in Early Childhood Special Education with a concentration in severe and multiple disabilities and deaf-blindness.
ASHA DISCLOSURE:
Financial -
• Receives Salary for Employment from National Center on Deaf-Blindness.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
Financial relationship with Helen Keller National Center/National Center on Deaf-Blindness.
Nature: Grant employee.
Nonfinancial -
No relevant nonfinancial relationship exists.
Donna Carpenter
(Co-Presenter), Kentucky Deaf-Blind Project, donna.carpenter@uky.edu;
Dr Donna Carpenter is the State Coordinator for the Kentucky Deafblind Project. She’s a certified teacher of the Deaf and Hard of Hearing, Elementary Certified Teacher, Montessori Early Childhood Certified with her doctorate in Educational Leadership.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
Robert Hill
(Co-Presenter), South Carolina Deaf-Blind Project/SC Department of Educ., rhill@scsdb.org;
Robert has called South Carolina home for 6 years where he serves as the State consultant for students who are Deaf or Hard of Hearing with the South Carolina Department of Education. Additionally, Robert is the state director for the State DeafBlind Project which is an interagency agreement between the South Carolina Department of Education and the South Carolina School for the Deaf and the Blind.
Robert holds a Ed.S., in Special Education, M.A., in Deaf Education, and M.Ed. in Education and Administration (Curriculum and Instruction). He is currently pursuing a course work in a M.A. in Teaching of impairment. He also holds graduate certificates in Early Childhood Education and English as a Second Language.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
Danna Conn
(Co-Presenter), Tennessee Deaf-Blind Project, danna.conn@vumc.org;
Danna is the Project Coordinator for the Tennessee State Deaf-Blind Project
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.