2024 Early Hearing Detection & Intervention Conference
March 17-19, 2024 • Denver, CO
3/18/2024 | 11:25 AM - 11:50 AM | Parent-to-Parent Support in a Clinic Based Setting: From Why to How | Capitol 7
Parent-to-Parent Support in a Clinic Based Setting: From Why to How
In recent years, interdisciplinary clinics have begun to utilize a clinic-based parent-to-parent support model. Sometimes known as ‘family consultants’ who are parents themselves, they serve in a non-medical role incorporated into the clinical setting to provide support to families. There are many benefits to including parent-to-parent support during a visit. For families, these may include: comfort and a sense of relief, connection to other resources, viewpoints that are holistic, and access to positive role models. There are some unique considerations and commitments by all team members that must be clearly understood in the planning and implementation of this support to create successful outcomes. This presentation will be presented by a panel of parents who have had the opportunity to serve in this role in different clinics, and will share strategies that both professionals and parents should consider in implementing elsewhere.
- Understand the unique roles and responsibilities of parent-to-parent support in a clinic-based setting.
- Learn how to implement techniques to build relational trust with professional colleagues in a clinic setting.
- Explore challenges and positive outcomes of having a parent supporter on a clinic team.
Presentation:
3478265_16447JanetDesGeorges.pdf
Handouts:
Handout is not Available
Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference
Presenters/Authors
Janet DesGeorges
(Primary Presenter,Co-Author), Hands & Voices, Headquarters, janet@handsandvoices.org;
Janet DesGeorges lives in Boulder, Colorado and is Executive Director of Hands & Voices Headquarters and the P.I. for the FL3 Center. Janet has presented to groups worldwide about the experiences of families as they journey through life with a child with deafness or hearing loss. Ms. DesGeorges received a program certificate from the MCH Public Health Leadership Institute in 2011 at the University of North Carolina – Chapel Hill.
As an EHDI Systems advocate, Janet believes in the principles and guiding philosophies of Hands & Voices towards a parent-driven, professionally-collaborative approach when supporting families in the early years. Her areas of interest include Leadership Development for parents who participate in systemic improvement; Deaf Education Reform and Improvement; Children’s Safety and Success(preventing child abuse and neglect); Early Hearing Detection and Intervention Systems; and Parent/Professional partnerships in Quality Improvement processes.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
Najwa Ghattas
(Co-Presenter,Co-Author), Arizona Hands & Voices, nghattas@azhv.org;
Najwa Ghattas lives in Phoenix, Arizona with her husband Will and is the mom to three children including Samantha (12) and Matthew (9) both born with a bilateral profound sensioneural hearing loss. Najwa Ghattas holds a Bachelor of Science in Accountancy and a Post Baccalaureate in Elementary Education. In 2014, Najwa became the Executive Director and Guide By Your Side Program Coordinator for Arizona Hands & Voices. Her journey led her to the EAR Foundation of Arizona where she spent two years as Lead Follow Up Coordinator for the Newborn Hearing Screening Program on behalf of the Department of Health Services working hard to meet the 1-3-6 EHDI goals. She has now transitioned into a new position as Outreach Specialist focusing her efforts on hospital and provider education. Her passion now lies in improving the messaging and family experience from the beginning, starting with the screening.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
Rosabel Agbayani
(Co-Presenter), Hands & Voices, Rosabel@handsandvoices.org;
Rosabel is the Consultant for Underrepresented Populations for Hands & Voices Headquarters and member of the Board of Directors for California Hands & Voices. She is the Chair of the Poway Unified School District Special Education Community Advisory Committee and Secretary of the Asian American Native Hawaiian Pacific Islander Target Resource Group for Rady Children's Hospital in San Diego, California. She is a mother of a child who is deaf/hard of hearing. She has a Bachelor of Arts in Human Development, Bachelor of Science in Communicative Disorders & Deaf Education, and a Masters in Public Health Specializing in Health Promotion. With her lived experience and her experiences working with low-income families and at-risk youth from a variety of cultural backgrounds, she understands the importance of family engagement and empowerment by building community capacity through education and advocacy. In all that she does, her spirit of collaboration is the driving force for creating a positive movement for the benefit of ALL children, especially those who are Deaf or Hard-of-Hearing. Her hope is to continue to build on the ideal of Family-Centered Care giving parents the access to comprehensive information from a wide variety of community resources. Rosabel hopes to bridge those essential connections within the community to enable children who are Deaf or Hard-of-Hearing reach their highest potential
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
Financial relationship with Hands & Voices.
Nature: Staff Consultant for Underrepresented Populations .
Nonfinancial -
No relevant nonfinancial relationship exists.
Kim Reimann
(Co-Presenter), Wyoming Families for Hands & Voices, kim.reimann@wyo.gov;
Kim Reimann is currently the Wyoming Families for Hands & Voices, Guide By Your Side (GBYS) Program Coordinator and is a Family Educator and Second Tester at CDC+ Audiology Clinic in Casper, Wyoming. She was the former assistant director of Wyoming Families for Hands & Voices from 2011 to 2015 before stepping down to work in other roles. The oldest of her three children, Gabrielle, was born with a moderate to moderately-severe bilateral sensorineural hearing loss, thus starting her on the path to what she does today. As a former educator and preschool director, Kim Reimann carried her love of education and helping others into her current role of serving families. Kim’s passion is working with parents and their children by engaging the circle of support between parents and professionals (physicians, audiologists, early interventionists etc.). She helps to empower parents by sharing her story of raising a child with hearing loss, supporting families by connecting them with appropriate information, resources, and networks so that families can make informed, educated decision to help their child reach their fullest potential.
She never imagined that being a parent would lead to working with many different organizations to help children who are deaf and hard of hearing (D/HH) through connections with professionals, providing advocacy and support for families, and working to establish and maintain different programs for the benefit of children who are D/HH in Wyoming. Through the years, Kim has been grateful to be a part of the changes and growth of Wyoming Families for Hands & Voices and to work with so many amazing people.
ASHA DISCLOSURE:
Financial -
Nonfinancial -
AAA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
Mariana Barquet
(Co-Presenter), Indiana Hands & Voices, mbarquet@health.in.gov;
Mariana Barquet was born and raised in Mexico City, Mexico. She moved to the US in 2004 and married an Indiana native in 2005. She started working as the Hispanic Parent Guide in Indiana in 2015 and has served in that position since. She spearheaded the efforts to start the Educational Advocacy Program under Hands & Voices, ASTra (Advocacy, Support and Training) and became the ASTra Program Coordinator in April 2019, when the Program officially started to operate. Shortly after, she took over the position of the Guide By Your Side Program coordinator as the previous coordinator stepped down. As the Programs Coordinator she oversees all operations of the ASTra and GBYS Programs that provide Parent to Parent support for all families of newly identified children with hearing differences all the way to exit of High School.
She was awarded the National Early Hearing Detection & Intervention Family Leadership Award for improving the involvement of the Hispanic families with children with hearing difference in the Early Intervention Program by 11% over this population growth in the State of Indiana through the last 4 years grant period under CDC requirements. She has served in the Hands & Voices Latino Council since 2016 and has presented in the EHDI National Conference, Hands & Voices Leadership Conference, and several state conferences in Indiana.
She has a deep passion for supporting families through the different stages of the educational process that often require the parents to become skilled advocates.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
Financial relationship with .
Nature: .
Nonfinancial -
Non-Financial relationship with .
Nature: .