16th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
February 26-28, 2017 • Atlanta, GA
2/28/2017 | 11:00 AM - 11:30 AM | Using EHDI Data Linkages to Understand Experiences and Outcomes for Children Who Are D/HH | Hanover F
Using EHDI Data Linkages to Understand Experiences and Outcomes for Children Who Are D/HH
Stakeholders within the EHDI system have concentrated their efforts to improve timely screening, identification and intervention for children who are deaf or hard of hearing. While research has demonstrated the benefits of these efforts, there is limited information regarding educational outcomes of children who are D/HH at a population level. For EHDI systems, the identification of outcomes for children who are D/HH is important in order to assess factors and develop best practices that impact and improve health and development. In 2016, Minnesota’s EHDI Program was able to leverage an existing tool to help answer these important questions.
The Early Childhood Longitudinal Data System (ECLDS) project was launched during 2012 through the support of a Race to the Top Early Learning Challenge grant from the federal Department of Education. The ECLDS contains child level data from early childhood, education, health, and human services systems that enable educators, stakeholders, and policymakers to answer a range of program and policy questions to better understand child and family experiences and outcomes. This innovative tool combines multiple data sets into one online, interactive database (http://eclds.mn.gov/).
EHDI Data was securely added to the ECLDS by the MN EHDI program and includes not only diagnostic information but comprehensive follow-up information for children who are D/HH including services received (i.e. hearing aid fitting, parent-to-parent support contact, and enrollment in the Deaf Mentoring Program). Data are reported publicly at an aggregated (grouped) level and individual children are not identified.
Presenters will share the process of integrating EHDI data into the ECLDS and in developing the analytic tools used. Presenters will demonstrate the ECLDS and highlight integrated data in order to better understand the growth, achievement, and well-being of children who are D/HH.
- • Discuss the importance of identifying outcomes for children who are D/HH at a population level.
- • Demonstrate the feasibility and results of linking EHDI data records (including Part C, Part B and EHDI-IS) to assess outcomes of children who are deaf or hard of hearing (D/HH)
- • Identify opportunities to link EHDI data within other state data systems
Presentation:
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Presenters/Authors
Nicole Brown
(), Minnesota Dept of Health, nicole.brown@state.mn.us;
Nicole Brown is a certified pediatric nurse practitioner and has worked in Minnesota’s Maternal and Child Health/Public Health field for over 19 years at both the state and local level. She is the supervisor for Newborn Screening long-term follow-up and is Minnesota’s EHDI Coordinator responsible to provide long-range planning and direction for the development, implementation, and evaluation of a statewide EHDI system for children once they are identified with hearing loss. Nicole served as the National Association of Pediatric Nurse Practitioners’ liaison to the American Academy of Pediatrics Task Force on Improving the Effectiveness of Newborn Hearing Screening, Diagnosis, and Intervention. She has worked with NCHAM as Quality Improvement Advisor and is the parent of two children who are deaf.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.