16th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
February 26-28, 2017 • Atlanta, GA
2/28/2017 | 3:00 PM - 3:30 PM | Addressing Loss to Follow-up Among Large States Through Collaboration | Grand Hall B
Addressing Loss to Follow-up Among Large States Through Collaboration
While clear progress has been made towards reducing loss to follow-up (LFU) and loss to documentation (LTD), some infants are still not receiving recommended follow-up services. Ensuring follow-up services are provided can be challenging, especially in states that have a large number of annual births because there are simply more infants requiring follow-up. To help address LFU/LTD the Centers for Disease Control (CDC), the Health Resources and Services Administration (HRSA), and the National Center for Hearing Assessment and Management (NCHAM) sought to engage states with over 150,000 annual births to discuss their successes and challenges in ensuring infants receive follow-up, procedures for collecting, analyzing, and reporting LFU/LTD data, and current follow-up protocols. The first step involved holding a meeting in Washington, D. C. on August 20115, which was attended by representatives from each of the five largest states (California, Florida, Illinois, New York, and Texas) to learn more about how each states address LFU/LTD. Following this successful meeting the states along with CDC, HRSA, and NCHAM have been collaborating to identify additional options to share lessons learned in addressing LFU/LTD. As part of the effort to ensure all deaf and hard of hearing infants are identified early and can receive intervention services the group has piloted a new CDC developed tool to assess the states’ EHDI Information System (EHDI-IS). This tool, the EHDI System Self-Evaluation Tool (ESSET), is intended to help jurisdictions identify the strengths and areas for further development of their EHDI-IS as it relates to an established set of Functional Standards. This session will discuss the progress and next steps of this group, including personal accounts from the participating states on how they used the ESSET and their perspective from this collaboration.
- Understand the challenges of ensuring follow-up services in states with large numbers of annual births
- Describe lessons learned that can help address loss to follow-up and loss to documentation among infants needing follow-up services.
- • Assess the role of collaboration in reducing loss to follow-up and loss to documentation
Presentation:
This presentation has not yet been uploaded or the speaker has opted not to make the presentation available online.
Handouts:
Handout is not Available
Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference
Presenters/Authors
Marcus Gaffney
(), CDC, nzg9@cdc.gov;
Marcus Gaffney is a Health Scientist and serves as the lead for the CDC EHDI Team. He has over 14 years’ experience working in the area of newborn hearing screening and is responsible for overseeing a range of activities, including supporting the development of jurisdictional EHDI Information Systems, assessing progress towards national goals, providing technical assistance, and supporting research efforts. He holds a Masters of Public Health from Mercer University.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Ashley Satterfield-Nash
(), CDC, asatterfield@cdc.gov;
Dr. Ashley Nash, DrPH is a research associate on the Early Hearing Detection and Intervention Team in the Division of Human Development and Disability at the Centers for Disease Control and Prevention (CDC). Her work focus on project management and development activities.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Doug Dittfurth
(), Department of State Health Services, TEHDI, Doug.Dittfurth@dshs.texas.gov;
TEHDI Coordinator
ASHA DISCLOSURE:
Financial -
Nonfinancial -
Ginger Mullin
(), Illinois Department of Public Health, ginger.mullin@illinois.gov;
Dr. Ginger Mullin has a Bachelor’s degree Communication Disorders. She also holds a Master’s and Doctoral degree in Audiology. She has worked in pediatric audiology and the EHDI system since 1995 and became Illinois’ EHDI coordinator in 2005. During that time she has been the principal investigator for both the Health Resources and Services Administration (HRSA) and Centers for Disease Control and Prevention (CDC) grants/ cooperative agreements. She has received specific training in pediatrics, public health, data management and Continuous Quality Improvement (CQI). As the EHDI Coordinator, Dr. Mullin has worked at the state and national level to promote newborn hearing screening, audiology diagnostics, targeted intervention, family-to-family support, stakeholder education and ongoing surveillance through age 3. She has presented regionally and nationally on pediatric assessment, amplification, the EHDI system of care, and partnering with families She has been part of the leadership teams for the Newborn Hearing Screening Training Curriculum (NHSTC), EHDI-PALS, Virtual Site Visit Project (VSV), as well as the national EHDI Meeting. She has severed in many capacities, including the President for the Directors of Speech and Hearing Programs in State Health and Welfare Agencies. She is the co-leader of EHDI Chats a national forum for EHDI Coordinators to meet monthly and share seamlessly while stealing shamelessly from one another to enhance state programs. She has been nominated several time for the Antonio Maxon Award at the National EHDI Meeting and received the Seaver Vision Award. Dr. Mullin was also a key leader for the EHDI and GBYS program which received the Generating Real Action by Cultivating Engagement (GRACE) Award from Expecting Health and Baby’s First Test. Dr. Mullin sits on the Illinois Universal Newborn Screening Advisory Committee and the Illinois Interagency Council on Early Intervention to guide work for children with low-incidence sensory disabilities.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Pam Tempson
(), Florida Dept. of Health, Pam.Tempson@flhealth.gov;
Pam Tempson has been the Early Hearing Detection and Intervention Coordinator for Florida for three years. Prior to this she worked in the field of early intervention for 15 years. She has a Master's Degree in Counseling and a Bachelor's Degree in Social Work.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Karl White
(), Utah State University, karl.white@usu.edu;
Dr. White is a Professor of Psychology, the Emma Eccles Jones Endowed Chair in Early Childhood Education, and the founding Director of the National Center for Hearing Assessment and Management. He has been the PI or Co-PI for over $50 million of competitively awarded research. His work has been recognized with awards from such diverse organizations as the Deafness Research Foundation, the American Association for Speech Language and Hearing, The Swedish Society of Medicine, and the Alexander Graham Bell Association for the Deaf. He has hundreds of publications and presentations at scholarly meetings, and has been an invited speaker to more than 35 countries. He also serves on many national and international advisory groups for organizations such as the United States Department of Health and Human Services, the World Health Organization, the Institute of Medicine, and the American Academy of Pediatrics.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Lori Iarossi
(), NYS DOH , lori.iarossi@health.ny.gov;
Lori Iarossi serves as the NY EHDI Coordinator within the Program Evaluation and Evidence-based Practices Unit in the Bureau of Early Intervention. She received her Bachelor of Science in Business Management and Economics from Empire State College. She has worked for the New York State Department of Health for 24 years, contributing to the development of many information systems to foster improved health outcomes for a diverse range of health issues including obesity prevention, HIV/AIDS, and worksite wellness.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.